July 27, 2012 | Published in Adoption, Advocacy, Ask the Parents, Cerebral Palsy, Day In And Day Out, Developmentally Delayed, Learning Disabilities, Mental Health, PDD

The Bubble Bursts…

by Heather P



                               

Sometimes, I lose my words.

Like someone popped my beautiful bubble that I worked so hard to get right.

Or I feel like the sky is closing in on me.

Actually, I feel like I’m the kid with the black cloud that only rains on me.

(Pity party, table for 1?)

So many times, on this journey, I have these huge highs….that are followed by the lowest lows. I fight hard, I play hard, I love hard…and then I get kicked in the teeth.

 

YAY: the insurance approved the wheelchair!

BOO: they’re not sure when we can actually have it (4-12 weeks is the estimate).

 

YAY: the school district approved hospital homebound for him.

BOO: But they don’t want to update his IEP until the week school starts (don’t even get me started on this!)

 

YAY: found a developmental psychiatrist we love.

BOO: the office just called to tell me she’s quit the practice.

 

Do you suffer from Black Cloud Syndrome?

 

Email Author    |    Website About Heather P

Heather is a mom of two, wife, and nurse educator doing what she can to save the day! She lives in Orlando where she is routinely spotted driving while singing ABBA--all on a mission to advocate and educate!

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1 Charity Deleon July 27, 2012 at 8:44 pm

I feel like your speaking for me! Your not alone I often feel this way. I hate the lows it’s really hard to pull yourself back out of them.

2 Heather P August 2, 2012 at 4:32 pm

It is…I guess that’s why we have each other, right?

3 Debbye July 27, 2012 at 9:17 pm

I do feel like sometimes a black cloud is following me, and many times have tried to figure out if it is me that is “cursed” with bad luck, or is my husband cursed? Or even the whole mountain that we live on is cursed?
I do know that this is irrational thinking, and even when those bubbles burst, I know everyone has their own bubbles, however small or large. I also know that there will be many more bubbles to come, and that we can handle it. :)

4 Heather P August 2, 2012 at 4:32 pm

EXACTLY…and thank you!

5 Maggie Mae July 28, 2012 at 6:45 pm

Track down and follow that developmental psychiatrist you love so well. Just ’cause she quit that practice doesn’t mean she quit practicing. She’s just doing it elsewhere and is not allowed (a medical version of the non-compete) to tell you where she’s gone. If you love her, find her and follow her!

6 Heather P August 2, 2012 at 4:32 pm

I found out…she’s out of state. BOO!

7 Charlene Long ( August 6, 2012 at 2:53 pm

Black Cloud seems to follow me!! Sorry you are going through the tough times. My black cloud seems to be a lot of reality. This might sound wrong but hopefully not….
OK.. You’re child was accepted for Taconic DDSO
Me: Yeah.. But that means this isn’t going away. This is our life…
Does that sound wrong?

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