We are not alone. — 5 Minutes for Special Needs

We are not alone.

by Janis


As I was sitting on the floor next to the crib on the eve of Mother’s Day, watching my son struggle to breathe, I wondered how many millions of moms had been in that very spot before me. With me.

In how many homes, hospitals and bedrooms were we watching over our sick children?

I wondered how many silent prayers were being lifted up in the dark across the world at that very moment.

In a bedroom, next to the crib a mother was watching. Come, on. Breathe baby, breathe.

In a NICU a mother was praying. I’m here, just open your eyes.

In an ER a mother was worrying. This doesn’t look good. How much longer until we see the doctor?

At the scene of an accident a mother was crying. Don’t close your your eyes.

At a cemetery a mother was whispering. I will miss you forever.

In this amazing community of mothers we are blessed to share so much. So much heartache, so much joy, so much sorrow and so much love.

I may have been sitting there alone and worried, but I know I wasn’t.

Somewhere, there was a woman who had walked this path before me.

Janis chronicles Austin’s life and medical journey at Sneak Peek At Me. She is an advocate for medically fragile children and families living with a rare disease diagnosis.

photo/Michael Shake

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1 mindy May 13, 2010 at 8:35 am

absolutely beautiful.

thank you.

2 Mandy Hornbuckle May 13, 2010 at 11:14 am

Beautiful post, Janis.

3 Courtney May 13, 2010 at 12:12 pm

I suspect that, as parents of children with special needs, we have been given the gift of empathy to see that for all mothers heartache comes with the joys.

I, too, felt compelled on Mother’s Day to remember all those who were struggling that day, that things were not just happy and fun.

I got breakfast in bed and cards and flowers, but one of my children at 8 years old can not say, “happy mother’s day”. I thought of those who long to be moms but cannot due to infertility; moms who have said goodbye to a child or who are struggling at a bedside; parents waiting for an adoption to go through.

I attached my own article about this but wanted to comment here because it was nice to see that others out there know what I know: motherhood is a wonderful, complicated gift that is heartbreaking and gratifying all at the same time.

Happy Mother’s Life!

4 Stacey Harris May 13, 2010 at 5:43 pm

wonderful post, emotional and yet positive!

5 Kathleen May 13, 2010 at 10:39 pm

Oh, this just tugged at my heart tonight. Last year, it was me sitting by a PICU crib on Mother’s Day, with a child struggling to breathe from pneumonia complicated by multiple intubations, yada yada…you’ve done more than I have, you know the routine. Your post spoke to my heart tonight.

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