I’ve been a little slack at posting here. And today, I’m leaving you with a picture that I found and I want to adapt it to be my new mantra. The reason for the short post today is: I am currently in Wisconsin at the Institute for Patient and Family Centered Care conference. Only 1…
Author Archives: Cheryl
2 Years Later, How Do I feel?
Saturday marked the 2 year anniversary since Jillian was diagnosed with Cerebral Palsy. Those first few days were a blur. Focusing mostly on survival and knowledge. I would stay up super late (like 3am) to research on how I could “fix” this problem. Oh poor naive me. There is no “fix”. We just have to…
A Dream Is A Wish, Your Heart Makes
As parents, we all dream about what our children’s future will be like. Will they be happy? Will they get married? Will they make me a grandparent? I’m a dreamer, I always have been and I always will be. Lately, I’ve been having a lot of uncertainty about how Jillian will grow up. I’m not…
When Online Meets In “Real” Life
When we moved to Toronto over 4 years ago, we left behind our families, friends and support system. Since we were moving into a new place where I didn’t know many people, coupled with an 8 month old daughter, I was isolated a lot and began reaching out via the internet to make some connections….
Beginning to Loath The IEP
As special needs parents, we all find ourselves fighting for our children. (Even ‘typical’ parents do.) Adam and I often look at each other and comment that raising a special needs child shouldn’t be so hard. Why are there so many hoops to jump through? I’m tired just trying to keep up with the girls….
Botox Saga Continues
As if it couldn’t get any worse. After fighting from March until May for Botox injections, we secured a donation from the manufacture in Canada for one round. Our hopes were to show our insurance company that the injections worked, that they would reconsider their decision. NO such luck. They wouldn’t even READ the letter…
Let’s Try Something Different
Happy Monday!! I thought we could do something a little bit different this week. I’m always thrilled to interact with readers, so hopefully we can get some great conversations going. On my personal blog, I wrote about being sucker punched. Obviously I was well aware that my girls would start asking questions about Jillian’s cerebral…
What I Wish…
I came across an interesting article today. And by interesting, it made me roll my eyes and sigh audibly for my husband to say “what is your problem?!” The article in question can be found here- “What I wish parents knew”: Doctors, teachers, therapists, and more weigh in. If I had opted for a longer title,…
Justification
I’m wondering if I’m the only one in this situation. One of my best friends moved to Toronto recently and on Friday, we (the girls and I) headed on the road to visit her. We hadn’t seen each other since her wedding day 5 years ago! When I’m meeting someone new, or seeing someone I…
I Need To Stop Making Promises!
We aren’t talking about major promises here. If we were, I would work as hard as I could to stay true to my word. I’ve blogged a lot about my friend Nena here in the past. And the last post I talked about her in, I had said that I would try not to talk…