Author Archives: Christy

Making the Tough Calls

When does the risk outweigh the benefit? How do you decide if medical treatments for your child are more harm than good? Making the tough calls has never been easy, and apparently the weight of this burden never goes away. I remember my son, 4 months old, critcially ill and crying incessantly. Crying because he…

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Out Sick

Just wanted to make a quick post to account for my absence this week! Mama is sick. Traveling from Texas to Ohio and back again in three days has wreaked havoc on my allergies, leaving me with a sinus cold 🙁 . I’m on the mend though and will back in full force soon! Y’all…

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The Difference A Week Can Make

What a difference a week can make! Last week I was looking toward Monday with apprehension, even dread. We were all but certain that our little man was to be diagnosed with a rare bone disorder that would probably require surgery. Pessimists? Realists? I’m not sure. After 3 years of bad news, it’s sometimes hard…

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Another Day, Another Diagnosis

Well, the day is almost here… I wish I was more excited, but it’s not THAT kind of day that we’ve been waiting for. For about a month now, we’ve been waiting for the July the 19th and Monday it will finally be here. This is the day we go to meet a new specialist….

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The Beat Goes On

Is it just me, or is it odd the way your world just stops? The lab results, the diagnosis, and the hospitalizations … the realization that your perfect child is sick. The words taste bad in your mouth.  Disease. Incurable. Rare. More questions than answers, more doubt than faith. You turn to the nearest window,…

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