Tammie — 5 Minutes for Special Needs

Tammie



                               

It’s official we started back at therapies…after a year break…under protest but just the same we’re back.  Yesterday we had our first visit, Physical Therapy, as we’re in the waiting room my son’s cracking up a at door that opens shuts constantly (first thing in the morning so busy time).  He proceeds to then find the need to dirty his diaper, and it’s time for therapy to start.  I go back with him or they’d never get anything done with him.  I was excited because the room no longer had the gym mat laying on the floor but an adjustable table.  Very cool addition!  So, I lay out the blanket and get my supplies and proceed to take off the shoes, then the shorts (now wet but he’s wearing pull ups too) so take the diaper off to wipe him off while talking to the therapists … SNAP … OMG!

My back went out.  It felt like my spine had just rolled over completely. The pain shot up so fast. I could barely continue changing the diaper.  If any of you have ever hurt your back you know the walk you do to compensate for your lower back hurting. The butt sticks out so much further and you’re hunched over. 

Thank goodness I had the medical stroller versus the wheelchair.  Our accesible van died this winter, so it’s easier for me to lift the stroller out but sometimes I have the chair.  I sat during my son’s appointment and watched thinking “please God let me walk out of here, get him in the car and the stroller in the car too”.  It was a good visit, she said he didn’t seem to be any tighter than he use to be and his range was good.  He laughed during the stretching too (makes it nice).  So after treatment she put him in his chair for me and buckled him in.  Now I just have to make it to the car. I made it but it did make it a very long day.  Lifting and caring for a child that isn’t able to do anything for themself when your sick or injured isn’t easy. 

Today I got up and could hardly get out of bed, it was going to be another very long day!  This time I had to go out.  Take husband to work, pick up my mom and take her to her oncology appointment, I called from her driveway and said I wasn’t coming in because my back was hurting SOOO bad I didn’t want to lift my son  in and out of the van any more than I had to lift him.  After the appointment I just dropped her off and came home. I stretched out on the floor with my son laying on my back. 

Then I laughed my butt off, here I was on the floor with my son and I had nobody else there to help me off the floor.  It took a while, but I did get up off the floor.  I decided not to do that again with help.  I did take the phone down on the floor with me but I didn’t have anyone to call.  Life is so much fun!

So it’s on days like this I wish we qualified for some help.  But even though my son has Cerebral Palsy (quadraplegic), blind, has seizure disorder, non-verbal, high tone, and completely dependent on us for careand  feeding … he doesn’t qualify for any assistance.  What do you do for help? Do you have friends or family that really come through for you at times like this?  I know in a couple days it’ll feel better, tender, but better … in the mean time I’ll keep doing what I do 🙂 with a smile.



                               

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New year to begin…

I know what your thinking…NEW SCHOOL YEAR?   How many days till school starts???  I have a friend that started counting the minute summer started.  I enjoy our homeschooling time together.  I love the beginning of a new year…the goals for the year, the dreams of what you want to work on, the reality of what will really happen.  The fresh Sharpened pencils, crayons (even though we have 12 boxes already), the paper, the books, the construction paper…the excitement…the adventures. 

This past school year offically closed today.  My son had his evaluation that we have to turn into our school system with our next notification letter for the upcoming school year. 

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My buddy and me~~

Ok, maybe it dates me that I can remember that tune that played out on television…”My buddy, my BUDdy, My buddy and me can climb up a tree, my buddy and me are the best friends we can be~~ My buddy and me”

Meet our Buddy "Toodles" yes named after Mickey Mouse clubhouse O'Toodles

I wish I could turn the picture for you…but editing isn’t letting me.  Anyway, this is Toodles.  A few posts ago I mentioned that we were considering purchasing a buddy for our son.  I had a cocker spaniel picked out…went to adopt and she was already spoken for that was Saturday. 
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Old school still stings…

I don’t have to tell anyone, I don’t think, about how HOT it’s been this week.  As I said before I’m a facebooker too, and sometimes my saturday posts get away from me, sorry.  Some days blend into the next, but I digress.

My father’s family has all kind of “drifted” apart (not saying that anybody is innocent on reasons why, it’s just drifted apart).  I have tried several times to put out the bridge to those that are willing to talk to me.  Because I was a teenager when the drifting happened.  I’ve sent things to my grandparents telling them of my high school graduation, wedding,  Christmas cards and things through out the years. 

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No, Not, won’t, can’t…The Negativity disease

I’m on facebook a lot…so much it’s an addiction, I think.  But there are people that I connect with on there that I wouldn’t necessarily be able to otherwise.  I have over 200 friends (and I actually know these people <surprisingly>).  But I find that there are people that post Negative thoughts a lot, I don’t mean just once a month  because it’s a bad day…I’m talking daily even hourly!  and not just my hair wouldn’t lay right or ugh I have to go grocery shopping.  I know we all have bad days once- in- a- while and sometimes it seems like they out number the good days BUT is it necessary to complain about everything? 

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Update & buying friends…

So here goes, today was the orthopedic appointment I talked about 2 weeks ago.  No surgery this summer, is what the doctor said.  But he may need it further down the line probably 2 more times.  I checked to make sure he wasn’t near retirement yet…he assured me he had at least another 15 or so years…OH GOOD, we’ll have aged out by then at our children’s hospital.  It also helps that this doctor makes me swoon.  (sorry, but it’s true).  He probably thinks, what is wrong with her, cause I always break into a sweat at his visits.   I really belive that his wife polishes his wedding ring every morning before he goes to work. 

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Two Peas in a pod…

One of my favorite pictures of the two of them.

Two peas in a pod may sound like twins but I swear if you looked at my husband and my son you’d see that they were cut from the same mold.  They look so much a like it’s just unreal!    I appreciate my husband and all that he does…even tonight when I wanted to come up with something whitty for this blog, he was trying to help…whit was just not there tonight!   He works and supports us as a family.  He gets up in the morning with our son & fixes and feeds him breakfast, because he knows how much I am NOT a morning person. 

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Anticipation of Orthopedic visit

It’s the night before surgery, and the house is a wreck. Tristan is sleeping but the bag is not packed.

I’m on the internet, Steve’s watching t.v. We’re both in denial that it’ll soon be here.

Early to rise, to arrive at 6:00, not looking forward this, I feel sick at the thought.

I think he’ll be fine but we still ask for  prayers.

When the surgery is over he’ll move upstairs.

To a room unknown where we’ll live for the week.

So soon he can come home and kiss on mom on the cheek 🙂

 

Ok, so it’s weak but it was an attempt to update at the time (6/22/2008) what was running through our minds the night before a surgery for my son’s hip dysplasia. 

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Dream Night at the Zoo

Our local Children’s hospital and Zoo partner up to have a “Dream Night”  the first Friday in June every year.  This event is by invitation and allows family oportunities that don’t happen every day.  It’s a night for Children with special needs get to feel special.  Families get to go & not have to answer questions, get staired at, and enjoy a family night out.  Our Zoo is the right size, it’s not overly huge it’s big enough to enjoy and get to spend time looking at all the exhibits not just the highlights you’ve been mapping out for weeks. 

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Speechless…finally!

Hello all!

Today, I took my son on a “Thomas the Train” ride with both of his grandmothers.  It was a little cooler today, last year it was SOO HOT, I prefered it this way.  Our local Children’s Hospital received some donated tickets for the kids, and one of our therapists thought of us (even though we haven’t been to see her since August).  We had a great time.  We got to sit with people we’d never met.  A family, grandparents and their daughter and her daughter sat close to us and we talked.  The Grandmother was sitting with my mother-in-law and her husband and daughter were behind them. 

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