Medications and Treatment Options — 5 Minutes for Special Needs — Page 2

Medications and Treatment Options

Gourmet baby from the getgo…

Do you cook seperate for someone in the family?  Do they have special dietary restrictions or needs? 

My son has a dairy allergy.  I say an allergy because it appears that if we avoid it all together we have a sweeter life.  We’ve never had an official test, but doctor’s have said why test you already know what works.  If he gets ANY dairy during a day, he’s fine, but come 2:00 in the morning life is much more…hmmmm…trying to come up with a nice word….sour.  He screams and scream and screams all night even through the morning.  So we found out early on if we avoid it all together we can sleep through the night.

Read the full article →


Diagnosis 911: Is it Really ADHD?

After 5 months of counseling, we have a working diagnosis of Attention Deficit Disorder (ADHD without the hyperactivity) with secondary Anxiety, a touch of perfectionism and perhaps a smidge of OCD. I see the Psychiatrist to get the official diagnosis for the 504 committee and to get the modifications and accommodations.

With barely a glance at the 15-page patient history and 11 minutes of casual questioning — including what I think is the clincher: Q: What does her teacher say about this? A: She says in 16 years of teaching she’s never had to redirect a child more than she does my Old Soul — the Psychiatrist pronounces the diagnosis of ADHD without the hyperactivity component. 

Read the full article →


Learning to ride…one step at a time…

A Cowboy Needs a Horse

Johnny lives in a big city, but has everything a cowboy could want
(Everything, everything)
He has a place to pan for gold
(Panning, panning)
And he has time to shoot a buffalo everyday
(Shooting, shooting)
And every night, he dreams he’s a cowboy riding the rangeFinally found the words to this song, it’s on a disney sing along VHS we have and we sing it all the time.  (well me & Tristan…and he seems to like it 🙂

Ridin’, ridin’ along…

Oh, a cowboy needs a horse, needs a horse, needs a horse
And he’s gotta have a rope, have a rope, have a rope
And he oughta’ have a song, have a song, have a song
If he wants to keep ridin’

Now a cowboy needs a hat, needs a hat, needs a hat
And a pair of fancy boots, fancy boots, fancy boots
And a set of shiny spurs, shiny spurs, shiny spurs
If he wants to keep ridin’

Oh, the fence is long, and the sun is hot
And the good Lord knows that a cowboy’s gotta keep
Ridin’, ridin’ along

So he gets himself a horse, and a rope, and a song
And he finds himself a hat, fancy boots, shiny spurs
And there’s nothing more he needs, or can have, or can get
If he wants to keep ridin’, ridin’ along

Spurs, shiny spurs
Boots, fancy boots
Sings a western song
And a horse
If he wants to keep ridin’, ridin’ along…

Tristan has been working up to the ridin’ for about 5 weeks now. 

Read the full article →


Is that too much to ask?

This week my husband’s grandmother passed away.  She was 93 year old, never took more than a multi-vitamin in her life.  She did however, several years back, begin her journey with Alzheimer’s Disease.  It was a long journey, spending 10 years in a nursing home.  She had 5 children, 12 grandchildren…and so many great grand children there’s just to many to count…and even one great great grandson.  She had an amazing life. 

So this brings me to mortality…I wonder what will happen to my son when something happens to me or my husband.  He should live long after us, but who will take care of him? 

Read the full article →


I was desperate for sleep

Define Sleep:   A natural periodic state of rest for the mind and body, in which the eyes usually close and consciousness is completely or partially lost, so that there is a decrease in bodily movement and responsiveness to external stimuli. During sleep the brain in humans and other mammals undergoes a characteristic cycle of brain-wave activity that includes intervals of dreaming.

Sometimes we need to be reminded of what sleep really is, since most of the time we’re lacking in this area.  I only used the first definition as I thought it was the most directly related definition.  I can remember when I first brought my son home and we (my son & I) were staying at my parent’s house. 

Read the full article →


New Groove

I need a sabbatical.  I know from time to time we all need a break.  I’ve taken to calling this much needed break a sabbatical. 

You see life got turned upside down in August.  My mom entered the hospital with what we thought was going to be pneumonia but spent 2 weeks inpatient getting a diagnosis of Stage IV Lung Cancer.  My heart sunk and hasn’t been the same since.  During her stay, my son got sick with pancreatitis from a medication he was on for seizures and ended up inpatient also.  He was in 4 days during her 14 days. 

Read the full article →



Is it Saturday already?

At times, this week has flown by. And at others, it has dragged on.

Especially from 5 a.m. to about 11 a.m. on Tuesday morning when Tim had surgery on his foot. He plays in an adult soccer league and a week ago Tuesday, he got kicked in the foot. That swift kick (aside from being malicious as he no longer had the ball) broke four metatarsals and his big toe. Hence, surgery and pins in his foot.

He is, as we say, down for the count. And I’ve always known and appreciated all he does for us.

Read the full article →


Notes from a Musician Mommy

music therapist I hate these words “lets get some lab work.”

My daughter, Mary, is a terrible stick.  Her blood flows sooo slowly.  Her veins collapse and they are hard to see in the first place.  There has been one person at the children’s hospital that has been able to stick her on the first try, but do we ever see her anymore???

The only thing that help Mary get through this is music.  I sing her favorite songs and have brought her little MP3 player to the lab while she is sitting there with her arm out.  She is focusing on listening to the tunes more than what is happening to her arm. 

Read the full article →


pills make the day go round

We tried 18 mg of Concerta (Methylphenidate). Then we upped it to 27 mg. After little success, we hesitantly moved up to 36 mg. We were surprised when it didn’t work very well. It has helped her sister immensely. That’s probably where we thought wrong.  Since when are siblings ever on the same page on anything? That would make parenting easy.

sleeping child

"I'm not tired, I won't be going to bed anytime soon."

Last month, we changed to Intuniv (Guanfacine). It’s a totally different type of drug for our entirely different type of child. It’s a brand new formulation and brand name.

Read the full article →


Flu Shot, Anyone?


Read the full article →