Education — 5 Minutes for Special Needs

Education



                               

Hi there! Remember me?

(don’t answer that…I’m beginning to feel a foreigner in my own land!)

 

So, here’s the current score. School District: 5, Jack: 3.

It’s looking rough out there.

His IEP was completed a few weeks ago. Because he turned 6, he has to be “transitioned” from the developmental delay label to something else. So you know what that means?

Testing.

Lots, and Lots, And LOTS of testing.

We’ve had 3 speech tests, an intelligence test, and today we’re going to the psychologist to have another battery of tests. Add to it physical and occupational therapy evaluations, and you have…

One. Crazy. Momma. (toting around a very unhappy, grumpy, and completely over it boy-child).

 

How’s your life going? I promise…once these few weeks end, I’m going to be back with a force. I have lots to share and tell (I’m learning so many things!), but no time to sit and write.

(this is being written while the sun is just breaking the horizon)

 



                               

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Hospital Homebound

School.

It’s happening around here. Some of the counties near where we live have already returned to recess, brown bag lunch, and smiling teachers. We…start Monday.

Well, my daughter starts Monday. My friend’s children start Monday.

Jack. Not so much.

See, we qualified for Hospital Homebound (HH). Basically, this is a school within a school. It has its own principal, teachers, guidance counselors, etc. Three times a week a teacher comes to my house and hangs out with Jack. Speech therapy and Physical therapy will visit him at home as well. However, it’s under the confines of the MotherSchool, which is the elementary that we are zoned for.

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Give ‘Em More Credit… BELIEVE!

You and I know, but does everyone else know? Our kids are smarter than we think. So much smarter than even we give them credit for. WAY smarter than what it says on their report card. And, smarter than any test can possibly measure. I know this… I KNOW IT! And, you know it too!

Graduating Kindergarten: The Big Little Man with the Principal, his gen-ed teacher, the classroom aide and his 2:1 aide.

I just wish everyone else — especially their teachers and the CSE administrators and the critical strangers that we sporadically run into who judge them so harshly — knew it in the same way.

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Scary Memories

I was sifting through my pile of papers this evening in preparation for our IEP meeting next week. It’s been a while since I’ve really taken the time to go through everything and get organized. We’ve had a relatively easy stretch for the last year or so, and I admit I have let things slide quite a bit. Well, we had a little reality check last week when the child had an hour long meltdown with a babysitter present. Time to gear up again.

I think I know why I deferred looking at all of these forms and reports. Reading through all of the paperwork brings back memories of the really scary times parenting this child.

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As They Grow…

I am the first to admit that March 7, 2007, was one of the toughest days of my life. I sat, holding the baby that only a week prior was declared “mine” in a court of law, while a neurologist told me my son had a diagnosis that changed his life forever.

I felt numb. I felt like I couldn’t breathe. I felt alone.

I bought chocolate. I bought wine.

I had to tell my mom…my best friend…my daughter.

All those years ago, I was sure that getting over the grief and desperation, and finding the point where I felt that I was educated enough to be an advocate was a huge achievement.

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Special Schools

This week has been one of those weeks where my emotions have gone from elation to fear to peace—and then back again!

It is time for Jack to head to school. In the past, I was determined that the only way he was going to do school was with me by his side (meaning: home school). I am, however, beginning to understand that there needs to be a break between my son and I.

His power (both physical and emotional) is getting stronger…

 

So, I looked in to schools. The public school near us would be OK, but he would be labeled as “Other Health Impaired” and a list of other things…meaning he would only hang out with the other kids for recess (which he can’t really do much of) and PE (same thing).

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A Lesson in “Nurse”

***I’m re-posting today because, ironically, I am at a mandatory class for my license!***

 

 

I am a red-blooded American Registered Nurse.

I earned the right to call myself a nurse when I passed the NCLEX (which is a fancy name for the worst test you will ever take in your entire life) and was granted a license–which coincidentally begins with the letters R and N.

There are a lot of other professions which somehow get lumped under “nurse.”

And, you see, this sort of makes me really mad. I worked my tail off to study and research and learn the clinical and intellectual aspects of my field.

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SPD Foundation Conference : International Symposium, Parent Workshop & Scientific Workgroup

SPD Foundation Presents in Boston

This March 16th – 18th, the SPD Foundation is raising the bar of information available to parents, caregivers, therapists and physicians alike.  It’s the 14th International Symposium & Parent Workshop – Celebrating the 10th Anniversary of Sensory Processing Disorder Scientific Workgroup.

This event is a ‘must attend’ for anyone involved with Sensory Processing disorder as this offers a unique opportunity to get updated on the recent research findings and clinical implications.  This SPD event also includes:

  • an introduction to Sensory Processing Disorder with examples from Diana A. Henry, MS, OTR
  • Carrie Fannin will be facilitating a parent networking meeting on the Friday before the conference
  • Other keynote speakers include:

Lucy Jane Miller, PhD, OTR
Alice Carter, PhD
John J.

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When I Realized I Needed My Own IEP

Well hello there stranger! I’ve been MIA for a month and I’ve missed your posts and interactions. But as of today, I’m back, and can’t wait to catch up on some great posts here!

What have I been doing all this time? (Besides doing the happy dance upon the arrival of my new escape Kindle?)

I was apparently re-enrolled in Special Needs Parenting 101: Moving Forward Often Means Moving Backward. And it was like that dream I used to have in college – the one where I wake up in class on the day of finals and realize I didn’t attend lectures or read the book.

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Do Teachers Know Your Kiddo As Well As You Do?

They know him almost better that we do….in a way.”

There was a time when C would have never said this.  A time when, should someone utter these words to either of us, the emotions would swell.  Our eyes, my eyes, would betray my immediate offense to the statement – the anger.  How could anyone think they know our son better than we?

We who have raised him, helped fight his demons cried with, held down for medical procedures, given therapy to, laughed with, cried with, marveled over and advocated for!  How could anyone know him better?!?  But on the day of this statement, he is correct…not that “they” know him better, but similarly or as well as we do. 

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