Sensory Processing Dysfunction — 5 Minutes for Special Needs

Sensory Processing Dysfunction



                               

When Zoe was little I spent a lot of time thinking  ( and writing) about about how different she was. Then she grew, and through her grade school years blossomed with the encouragement to try and do her best as I made sure she was always included, and treated just like everyone else.

Zoe will be starting sixth grade next year, and growing into who she is meant to be. She is quick to laugh and smile, full of pre-teen sass.

I have always maintained my own set of rules for Mothering Zoe. Many of them involve not making a big deal about her disabilities, within our family .. even in small ways. [click to continue]



                               

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Jack met with the developmental psychologist on Tuesday for a few hours. We have been noticing some hard-core aggression along with some other really disturbing “new habits” that have come up in the past few months (for example, he’s taken to not sleeping again, and he’s picked all the nails off his fingers and toes). It was time.

She is amazing.

The office is amazing.

They have an education advocate who comes in to introduce herself and she calls you to make sure you’re getting everything you should from the county (school wise). I nearly wept with joy.

After two hours of pouring our hearts out and her seeing Jack at his absolute worst, I felt like we were actually in the right place, with the right provider for Jack.

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The Beauty in the Beast

We, lovingly, call Jack “The Beast” sometimes. We don’t mean it in a derogatory way at all. Just in a way that we all know is true— he’s kinda Beastly (he’s a growler…loves to growl all the time when we’re out. Growls at old ladies, at kids, at dogs…). Sometimes he’s “Beastly” or “My Beasty Boy”… you get the picture.

You see, I can see the Beauty in My Beast.

You see a kid that growls and is grumpy.  I see a kid who growls because he’s sick of people staring at him, and who hasn’t slept more than 4 hours a night in his life.

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As They Grow…

I am the first to admit that March 7, 2007, was one of the toughest days of my life. I sat, holding the baby that only a week prior was declared “mine” in a court of law, while a neurologist told me my son had a diagnosis that changed his life forever.

I felt numb. I felt like I couldn’t breathe. I felt alone.

I bought chocolate. I bought wine.

I had to tell my mom…my best friend…my daughter.

All those years ago, I was sure that getting over the grief and desperation, and finding the point where I felt that I was educated enough to be an advocate was a huge achievement.

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Special Schools

This week has been one of those weeks where my emotions have gone from elation to fear to peace—and then back again!

It is time for Jack to head to school. In the past, I was determined that the only way he was going to do school was with me by his side (meaning: home school). I am, however, beginning to understand that there needs to be a break between my son and I.

His power (both physical and emotional) is getting stronger…

 

So, I looked in to schools. The public school near us would be OK, but he would be labeled as “Other Health Impaired” and a list of other things…meaning he would only hang out with the other kids for recess (which he can’t really do much of) and PE (same thing).

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Send a Special Thank You to a Favorite Doctor

Originally posted on my own site (ColoradoMoms.com) I wanted to share this with all of you. The Autism Science Foundation is an amazing organization and is have a unique fundraiser.

I’m lucky to be blessed with such amazing doctors that have helped us with our journey into Autism. Dr. Moe from Children’s Hospital in Denver is amongst my favorites. His kind words and gentle demeanor wrapped around me like a hug as he explained the different tests we should do back when my son was just 9 months old and showing the first signs that something was amiss.

The Autism Science Foundation has a great way I can thank Dr.

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Weddings (and other such events)

Tomorrow my brother is getting married.

In a quiet, small gathering.

On a boat.

At Disney World.

 

Now, while most people think this sounds romantic and lovely, I am a nervous wreck. My brother loves my son no matter what; however, if he decides to melt down or scream or narrate the entire event, I fear he’ll never speak to me again!

So, to make myself feel better, I tried to think of all the ‘What If’ moments that could happen, so that when something minor happens, I won’t freak out. It doesn’t make any sense to anyone but me, but that is OK.

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SPD Foundation Conference : International Symposium, Parent Workshop & Scientific Workgroup

SPD Foundation Presents in Boston

This March 16th – 18th, the SPD Foundation is raising the bar of information available to parents, caregivers, therapists and physicians alike.  It’s the 14th International Symposium & Parent Workshop – Celebrating the 10th Anniversary of Sensory Processing Disorder Scientific Workgroup.

This event is a ‘must attend’ for anyone involved with Sensory Processing disorder as this offers a unique opportunity to get updated on the recent research findings and clinical implications.  This SPD event also includes:

  • an introduction to Sensory Processing Disorder with examples from Diana A. Henry, MS, OTR
  • Carrie Fannin will be facilitating a parent networking meeting on the Friday before the conference
  • Other keynote speakers include:

Lucy Jane Miller, PhD, OTR
Alice Carter, PhD
John J.

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It’s POTTY TIME!!!!

A few years ago, I fell in love with Signing Time. Jack was struggling to do much more than scream and I was increasingly frustrated. In a last ditch effort, I bought some DVDs and prayed that he would communicate with me. Slowly, he began to sign (things like more and done) and I felt like maybe I could communicate with him.

That’s when I decided that I was going to stalk Rachel Coleman (co-Founder and general all-around awesome human being). I followed her on Twitter and began to join the weekly Signing Time chat (sadly, they’re no longer doing it–because it was SUPER fun!).

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Message for ALL Mom’s.. LOVE your kids, as if they were dying..

My day had started like any other, I was up at 5 packing lunches and backpacks, while trying to gulp down some coffee. I had an appointment at the office later, so I spent a few minutes standing in front of my closet perplexed and sighing. I looked in the mirror, briefly noting the major damage 40 plus years and nightly interrupted sleep can bring.  Finally, by 7 am, we were all dressed and ready, so we hit the road to drop Zoe’s big sister O, at her school first.

Later, it was just Zoe and I in the car. The sun was streaming through the car windows, the radio was on and I was trying to make Zoe laugh.. 

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