Down Syndrome — 5 Minutes for Special Needs

Down Syndrome



                               

When Zoe was little I spent a lot of time thinking  ( and writing) about about how different she was. Then she grew, and through her grade school years blossomed with the encouragement to try and do her best as I made sure she was always included, and treated just like everyone else.

Zoe will be starting sixth grade next year, and growing into who she is meant to be. She is quick to laugh and smile, full of pre-teen sass.

I have always maintained my own set of rules for Mothering Zoe. Many of them involve not making a big deal about her disabilities, within our family .. even in small ways. [click to continue]



                               

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Christmas Wonder for My Kids with Down Syndrome

This year, like the past seven, we’d been telling my live-in-the-moment Boys (identical twins with Down syndrome) for weeks that Santa Claus would soon be paying us a visit and leaving toys under Christmas trees all around the world for good little girls and boys in honor of Jesus’ birthday.

“Why?”

Because Jesus is all grown up and doesn’t want toys anymore but He remembers how great it was to get presents when He was a kid so he decided to share His with all the children who listen to their Mommies and Daddies. I got an “Oh yeah? That’s nice, Mom” look and then they went about their business unfettered by the information.

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Antibiotics: How Do YOU Roll?

My Sick Little Man

Need a little help here, PLEASE: My Big Little Man (who is smaller by 5 lbs now than My Little Man) got that back-to-school cold going around. For us, that means an imminent sinus infection as his compressed sinus cavities — a trait common to those with Down syndrome — makes him prone to this particular affliction. In addition, he’s inherited my lousy sinuses, which I got from my mom, so he’s got a double whammy! This is his thing!

So there I was at my VERY trusted Doc on Tuesday for a preemptive visit. My Big Little Man was already congested to the point of no in- or out-going passage in either nostril — read: no drip, no air… just STUCK.

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Leaps and Bounds in Baby Steps

The Boys are swimming underwater like frogmen. Doing underwater headstands, flips and dive-toy retrieval as well as sporting an admirable breast stroke… though they clearly prefer being UNDER the water versus on its surface. (They get that from Mom and Dad being SCUBA divers, I guess.)  The Boys are competent dead-man floaters (face down in the water, breath-holding). But that won’t help them pass the Red Cross Level 2 swim test OR, more importantly, stay afloat if they suddenly find themselves in water over their heads. They’re confident but careful in the pool; Big Little Fishes improving daily. Two days ago, their “typically-developing” friend Nick showed them how HE can float on his back in our pool.

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Give ‘Em More Credit… BELIEVE!

You and I know, but does everyone else know? Our kids are smarter than we think. So much smarter than even we give them credit for. WAY smarter than what it says on their report card. And, smarter than any test can possibly measure. I know this… I KNOW IT! And, you know it too!

Graduating Kindergarten: The Big Little Man with the Principal, his gen-ed teacher, the classroom aide and his 2:1 aide.

I just wish everyone else — especially their teachers and the CSE administrators and the critical strangers that we sporadically run into who judge them so harshly — knew it in the same way.

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The Slippery Slope of Sickness

Happy Little Buggers Despite Pneumonia, 2010 

This scenario has played out several times over the past two years… ever since that fateful camping trip that culminated with My Beautiful Boys hospitalized with pneumonia for two weeks – one with a partially collapsed lung — while my Old Soul was juggled amongst family and friends developing her own lesser- case of pneumonia. Bad mama that I am, I erroneously thought that camping at the beach and a bit of fresh air might do The Boys’ colds a bit of good. THAT is now the experience we balance all of our vacation decisions against; the thing to avoid at all cost when one of our kids catches a cold that threatens to endanger any travel plans.

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It’s POTTY TIME!!!!

A few years ago, I fell in love with Signing Time. Jack was struggling to do much more than scream and I was increasingly frustrated. In a last ditch effort, I bought some DVDs and prayed that he would communicate with me. Slowly, he began to sign (things like more and done) and I felt like maybe I could communicate with him.

That’s when I decided that I was going to stalk Rachel Coleman (co-Founder and general all-around awesome human being). I followed her on Twitter and began to join the weekly Signing Time chat (sadly, they’re no longer doing it–because it was SUPER fun!).

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Special Exposure Wednesday – Julianna

Meet Princess Julianna, or more accurately Pixie Princess Julianna. Don’t let the angelic face fool you, the girl can hold her own against two brothers. Get to know her in her mom’s own words.

Share what you managed to capture this week. Please spread the comment love around.

special needs wordless wednesday

*This is part of a month long series of posts for Down Syndrome Awareness Month. If you want your child featured this month for SEW (I have one more slot left) or you have a particular post about your child with Down Syndrome you want to share (I can post it on my Friday slot), email me at florence at just writing dot net.

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Special Exposure Wednesday – Big Blueberry Eyes

The first thing I noticed about Kayla is her big blueberry eyes. She has the biggest, bluest eyes I have ever seen. When she smiles, they just seem to light up.

The fact that she has Down Syndrome just seems so secondary to who she is. Get to know Kayla more in her mom’s own words.

Share what you managed to capture this week. Please spread the comment love around. Thanks!

special needs wordless wednesday

*This is part of a month long series of posts for Down Syndrome Awareness Month. If you want your child featured this month for SEW (I have one more slot left) or you have a particular post about your child with Down Syndrome you want to share, email me at florence at just writing net.

Read the full article →
 


                                       

Special Exposure Wednesday – Rachel Cooperstein

To start off Down Syndrome Awareness Month, enjoy this video of a very special girl.

special needs wordless wednesday

Share what you managed to capture this week. Please spread the comment love around. Thank you, 🙂

*originally posted here

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