Category Archives: Down Syndrome

Now She Knows She’s Different

When Zoe was little I spent a lot of time thinking  ( and writing) about about how different she was. Then she grew, and through her grade school years blossomed with the encouragement to try and do her best as I made sure she was always included, and treated just like everyone else. Zoe will be starting…

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Christmas Wonder for My Kids with Down Syndrome

This year, like the past seven, we’d been telling my live-in-the-moment Boys (identical twins with Down syndrome) for weeks that Santa Claus would soon be paying us a visit and leaving toys under Christmas trees all around the world for good little girls and boys in honor of Jesus’ birthday. “Why?” Because Jesus is all…

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Antibiotics: How Do YOU Roll?

Need a little help here, PLEASE: My Big Little Man (who is smaller by 5 lbs now than My Little Man) got that back-to-school cold going around. For us, that means an imminent sinus infection as his compressed sinus cavities — a trait common to those with Down syndrome — makes him prone to this…

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Leaps and Bounds in Baby Steps

The Boys are swimming underwater like frogmen. Doing underwater headstands, flips and dive-toy retrieval as well as sporting an admirable breast stroke… though they clearly prefer being UNDER the water versus on its surface. (They get that from Mom and Dad being SCUBA divers, I guess.)  The Boys are competent dead-man floaters (face down in the water, breath-holding). But…

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Give ‘Em More Credit… BELIEVE!

You and I know, but does everyone else know? Our kids are smarter than we think. So much smarter than even we give them credit for. WAY smarter than what it says on their report card. And, smarter than any test can possibly measure. I know this… I KNOW IT! And, you know it too!…

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The Slippery Slope of Sickness

Happy Little Buggers Despite Pneumonia, 2010  This scenario has played out several times over the past two years… ever since that fateful camping trip that culminated with My Beautiful Boys hospitalized with pneumonia for two weeks – one with a partially collapsed lung — while my Old Soul was juggled amongst family and friends developing…

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It’s POTTY TIME!!!!

A few years ago, I fell in love with Signing Time. Jack was struggling to do much more than scream and I was increasingly frustrated. In a last ditch effort, I bought some DVDs and prayed that he would communicate with me. Slowly, he began to sign (things like more and done) and I felt…

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Special Exposure Wednesday – Julianna

Meet Princess Julianna, or more accurately Pixie Princess Julianna. Don’t let the angelic face fool you, the girl can hold her own against two brothers. Get to know her in her mom’s own words. Share what you managed to capture this week. Please spread the comment love around. *This is part of a month long…

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Special Exposure Wednesday – Big Blueberry Eyes

The first thing I noticed about Kayla is her big blueberry eyes. She has the biggest, bluest eyes I have ever seen. When she smiles, they just seem to light up. The fact that she has Down Syndrome just seems so secondary to who she is. Get to know Kayla more in her mom’s own…

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Special Exposure Wednesday – Rachel Cooperstein

To start off Down Syndrome Awareness Month, enjoy this video of a very special girl. Share what you managed to capture this week. Please spread the comment love around. Thank you, 🙂 *originally posted here

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