ODD — 5 Minutes for Special Needs



I have to tell you, I am a huge sucker for holiday music. I love hearing it while I shop in the grocery and when I’m in the car. I dream of falling snow flakes and cozy fires. I actually know all the verses of many traditional hymns and get mad when artists don’t sing them!

Then, the other night (after a particularly difficult night with the boy child) I started to think about the words, and realized that no one thought of the Special Needs Family when they wrote Christmas music.

1. Silent Night–Right. Like that’s ever gonna happen!

2. Deck the Halls—We don’t use words that may trigger an aggressive action! Nor do we often fa, la, la…Nor do we eat figgy pudding…

3. I Want a Hippopotamus for Christmas— Seriously? All I want is sleep. And to win the lottery.

4. Jingle Bells—Sure. I really want to” jingle all the way” after packing the car with supplies, medication, the 43 pies I was “asked” to make, and listening to the child who doesn’t eat scream because the car smells like food!

5. Percy, the Puny Poinsettia—Are you making fun of me? Because I can’t keep the damn thing alive? Well, I’ve been busy…keeping the child alive!

6. I Wonder As I Wander–Yeah? Me too…

7. Rudolph the Red-Nosed Reindeer—Poor thing.

8. Santa Claus is Comin’ to Town–Just please don’t tell the kid until the morning of Christmas, otherwise he won’t sleep for weeks.

9. Hark the Herald Angels Sing–Which then prompted a three hour conversation about who Harold is and why are the Angels singing about him?!

10. Good King Wenceslas–Really? REALLY? I had to Google it just to spell it! Now make a kid with speech problems say that!



(I wish you ALL a safe, uneventful, HEALTHY, happy holiday! I’m re-posting next week as we’ll be on the move to our new home! May 2012 bring us all some wonderful things–if nothing more than making our friendships stronger!)



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Our Role & words hurt

So I was thinking, draw 3 circles on a piece of paper.  One inside the other, so really you have 3 cirles around each other(as pictured)
The inner circle is our children, this is their culture of being a child with special needs.
The middle circle is us, the parents.  We’re not in the same circle as our kids because we’ll never fully understand what it’s like to be in that inner circle.  Even if, as parents, we have special needs.  We understand that as individuals, things have changed and are not the same for our children as it was for us in our younger days.
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My Angel

I knew that my body was giving everything to this little person growing inside me. I knew my life would never be the same; that our lives would never be the same. There were no words to express the happiness I knew my belly contained. I knew that this little being was my angel; my Guardian Angel here to help me make my life what it was to be. Nothing anyone can ever tell me will change my feeling on this. He is my angel and in his own way he teaches me, and everyone around him to take note and see what is truly important in life.

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From now on

I’m too young to have a child taking the ACT.

I’m too young to have a child taking the ACT.

I’m too young to have a child taking the ACT.

I just dropped my son off for the ACT.

I got my eyebrows waxed. Stopped at Panera for a scone and some coffee. Did my makeup. Listened to the news. And now I sit outside of a testing room in a science building on a very large college campus. Waiting.

Two hours to go.

Then I subtracted my year of birth from 2011.

I am 34 years old.

Too young to have my baby taking the American College Test.

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Tick tock

She fell asleep around 11 p.m. curled up with Tim in an armchair. When his foot began to throb and he needed to move, I pulled her onto my lap where she stayed until everyone went to bed. She slept through the end of “Despicable Me,” Dick Clark’s New Years Eve, clinking glasses, and excited cheers.

As the New Year celebrations went on around her, Isaac commented that he couldn’t believe she was still asleep. I wasn’t surprised. She goes through a lot everyday. Uses extra energy to get around, extra energy to walk, extra energy to get from place to place.

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Is it Saturday already?

At times, this week has flown by. And at others, it has dragged on.

Especially from 5 a.m. to about 11 a.m. on Tuesday morning when Tim had surgery on his foot. He plays in an adult soccer league and a week ago Tuesday, he got kicked in the foot. That swift kick (aside from being malicious as he no longer had the ball) broke four metatarsals and his big toe. Hence, surgery and pins in his foot.

He is, as we say, down for the count. And I’ve always known and appreciated all he does for us.

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