We have known for a few months now that our 8-month-old Hannah has this neurodegenerative brain disease that was likely going to take her away from us in a few years. We know what the symptoms are, we know the process it is going to take…we know all of that. We know she is…
Category Archives: Rare Diseases
Creating my own support system
Hannah will be 8 months old soon, and we have been dealing with her medical issues since her second day of life. She was about 2 months old once we started dealing with specialists who tested her for everything under the son. However, it wasn’t until we met with her first genetics doctor that we realized…