Spina Bifida — 5 Minutes for Special Needs

Spina Bifida



                               

A few years ago, I fell in love with Signing Time. Jack was struggling to do much more than scream and I was increasingly frustrated. In a last ditch effort, I bought some DVDs and prayed that he would communicate with me. Slowly, he began to sign (things like more and done) and I felt like maybe I could communicate with him.

That’s when I decided that I was going to stalk Rachel Coleman (co-Founder and general all-around awesome human being). I followed her on Twitter and began to join the weekly Signing Time chat (sadly, they’re no longer doing it–because it was SUPER fun!).

Over the years, Signing Time has become more than just a cute DVD to help my child learn how communicate with me–it’s become part of our family. For that, I am forever grateful.

So, imagine my surprise when I heard that:

A) There was a POTTY TIME DVD coming out!

B) I was going to get to review it!

Truly, this is fantastic! It’s 30 minutes of fun–with some valuable potty training lessons (My personal favorite song is “I Wash My Hands!”)!

The target audience is aged 1-5, but I figure that’s not relevant in our special situations! It’s really quite adorable. Rachel approaches potty training as such a positive thing–nothing to be worried about! The video focuses on listening to your body and doing what you need to do, when you need to do it! They speak of celebrating such amazing potty goodness—which I can appreciate (we celebrate every tiny milestone here!)!

If the DVD isn’t enough for you…the Potty Time website has numerous ways in which you can get even more support on your Potty Journey!

* There’s an app for that!

* You can purchase the Potty Watch—it’s a watch that sings and lights up to remind your child to go “try!”

* Print of this handy chart to help everyone celebrate success!

* Or…just read articles and tips for all parents.

If that’s not enough for you (or you’re a groupie like me), follow Signing Time on Twitter or Facebook—and also do the same for Potty Time! (TwitterFacebook)

 

But wait…there’s more!

I want YOU to have a copy to help you on your Potty Training Expedition! Leave a comment telling me why you would love this–simple, right? I will use the random generator (Jack picks a name out of a hat) to draw a number, and that person will get their very own copy of Potty Time! Yippee! Entries must be in by Wednesday, February 22, 2012 at 12 noon (my time–East coast).

Good Luck! And thank you Signing Time for enriching my life in so many beautiful ways! Love you!

 

 



                               

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Spina Bifida Awareness Month

spina bifida childEvery day in the United States, an average of 8 births are affected by Spina Bifida or a similar birth defect of the brain and spine.

  • Spina Bifida remains the most commonly occurring complex birth defect in this country.
  • The root cause of Spina Bifida is unknown and the effects for each person are different.
  • Spina Bifida is a multitude of problems that affect the mind, the body and the spirit.
  • Advancements in treatment and prevention have opened new doors for those with Spina Bifida.
  • While it presents unique challenges, those affected by Spina Bifida are able to attend school, work, raise a family, and spend time with friends just like everyone else.
Read the full article →
 


                                       

Our Role & words hurt

So I was thinking, draw 3 circles on a piece of paper.  One inside the other, so really you have 3 cirles around each other(as pictured)
 
The inner circle is our children, this is their culture of being a child with special needs.
The middle circle is us, the parents.  We’re not in the same circle as our kids because we’ll never fully understand what it’s like to be in that inner circle.  Even if, as parents, we have special needs.  We understand that as individuals, things have changed and are not the same for our children as it was for us in our younger days.
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My Angel

I knew that my body was giving everything to this little person growing inside me. I knew my life would never be the same; that our lives would never be the same. There were no words to express the happiness I knew my belly contained. I knew that this little being was my angel; my Guardian Angel here to help me make my life what it was to be. Nothing anyone can ever tell me will change my feeling on this. He is my angel and in his own way he teaches me, and everyone around him to take note and see what is truly important in life.

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Tick tock

She fell asleep around 11 p.m. curled up with Tim in an armchair. When his foot began to throb and he needed to move, I pulled her onto my lap where she stayed until everyone went to bed. She slept through the end of “Despicable Me,” Dick Clark’s New Years Eve, clinking glasses, and excited cheers.

As the New Year celebrations went on around her, Isaac commented that he couldn’t believe she was still asleep. I wasn’t surprised. She goes through a lot everyday. Uses extra energy to get around, extra energy to walk, extra energy to get from place to place.

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Smooth

Is it Saturday already?

At times, this week has flown by. And at others, it has dragged on.

Especially from 5 a.m. to about 11 a.m. on Tuesday morning when Tim had surgery on his foot. He plays in an adult soccer league and a week ago Tuesday, he got kicked in the foot. That swift kick (aside from being malicious as he no longer had the ball) broke four metatarsals and his big toe. Hence, surgery and pins in his foot.

He is, as we say, down for the count. And I’ve always known and appreciated all he does for us.

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Staring

I try to teach my kids to be curious, but not to stare. To be kind, but not condescending. To be honest, but reserved.

Last weekend, we made a trip to the outlet malls about an hour away from our home. The boys were both in desperate need of soccer shoes. Isaiah was in even more desperate need of jeans and sweaters as he has grown no fewer than eight inches in the last six months or so. And this mama always “needs” to visit the shoe store.

It’s not that I don’t notice the staring anymore, it’s just that I don’t pay attention.

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