Category Archives: Spina Bifida

It’s POTTY TIME!!!!

A few years ago, I fell in love with Signing Time. Jack was struggling to do much more than scream and I was increasingly frustrated. In a last ditch effort, I bought some DVDs and prayed that he would communicate with me. Slowly, he began to sign (things like more and done) and I felt…

Continue Reading »

Spina Bifida Awareness Month

Every day in the United States, an average of 8 births are affected by Spina Bifida or a similar birth defect of the brain and spine. Spina Bifida remains the most commonly occurring complex birth defect in this country. The root cause of Spina Bifida is unknown and the effects for each person are different….

Continue Reading »

Our Role & words hurt

So I was thinking, draw 3 circles on a piece of paper.  One inside the other, so really you have 3 cirles around each other(as pictured)   The inner circle is our children, this is their culture of being a child with special needs. The middle circle is us, the parents.  We’re not in the…

Continue Reading »

My Angel

I knew that my body was giving everything to this little person growing inside me. I knew my life would never be the same; that our lives would never be the same. There were no words to express the happiness I knew my belly contained. I knew that this little being was my angel; my…

Continue Reading »

Tick tock

She fell asleep around 11 p.m. curled up with Tim in an armchair. When his foot began to throb and he needed to move, I pulled her onto my lap where she stayed until everyone went to bed. She slept through the end of “Despicable Me,” Dick Clark’s New Years Eve, clinking glasses, and excited cheers….

Continue Reading »

Smooth

Is it Saturday already? At times, this week has flown by. And at others, it has dragged on. Especially from 5 a.m. to about 11 a.m. on Tuesday morning when Tim had surgery on his foot. He plays in an adult soccer league and a week ago Tuesday, he got kicked in the foot. That…

Continue Reading »

Staring

I try to teach my kids to be curious, but not to stare. To be kind, but not condescending. To be honest, but reserved. Last weekend, we made a trip to the outlet malls about an hour away from our home. The boys were both in desperate need of soccer shoes. Isaiah was in even…

Continue Reading »