Laughing Through The Tears — 5 Minutes for Special Needs

Laughing Through The Tears



                               

When Zoe was little I spent a lot of time thinking  ( and writing) about about how different she was. Then she grew, and through her grade school years blossomed with the encouragement to try and do her best as I made sure she was always included, and treated just like everyone else.

Zoe will be starting sixth grade next year, and growing into who she is meant to be. She is quick to laugh and smile, full of pre-teen sass.

I have always maintained my own set of rules for Mothering Zoe. Many of them involve not making a big deal about her disabilities, within our family .. even in small ways. [click to continue]



                               

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Disclaimer: I am writing this as a woman, so it’s going to have a womanly slant. No, I do not hate men. Yes, I know there are plenty of great Daddies who do a good job of helping out–and I salute you, Good Daddy!

 

I spent the majority of the past 3 weeks in a haze of Christmas frenzy, family, and…trying to avoid the news. I really think if I hear the word “Fiscal Cliff” one more time, I may have to go find it and fling myself over it!

As I was driving this morning, I thought of something.

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How to Hold it Together When the World Falls Apart

Hi you guys!

This is basically my week again…only different surgery on the stomach…I’ll update you later…

 

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I get tired–the kind of tired that makes your bones ache.

Sometimes, I get grumpy too.

Hey, don’t we all?

In this ever-winding road of special needs parenting, I find myself often in a place of worry—of frustration.

Nothing seems to go right. Ever.

If there were 2 possibilities–say, vanilla or chocolate–Jack would somehow end up being banana. Even if there was no possible, plausible way for that to happen, it would.

So, you would think that I would be surprised when weirdness happens.

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The Chicken

Life sucks sometimes, right?

Yeah.

In the past few weeks, lots of heavy stuff has been going on (in my world and in the world at large). We’re still having testing done on Jack for school. My daughter is hormonal and vacilates from angel to devil in mere moments. I’m struggling to muddle through my final classes while taking care of Jack’s needs, my family’s needs, and still act as taxi driver, head chef, and laundress. If I see one more political ad, I might break the television.

So, I snapped.

(Do you know the story of Beyonce the Chicken?

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Be Prepared….

Living in Florida, I know a bit about natural disasters. Like when, in 2005, 3 hurricanes hit us in 6 weeks. I got a new roof twice.

Back then, I only had the Girl Child, who was 5. She was self-sufficient, opinionated, and stubborn–but she knew when Momma said, “Get in the bathroom and cover up with a mattress, ” I meant business!

Fast forward to now. Jack is part of us. He requires extra preparation and forethought.

Did you know…that there are a TON of states that could, at any time, be hit by a hurricane? Did you know that September is the month when hurricanes most likely occur?

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Moms Gone Mad!

I have tried…

When Jack was taking therapy a million hours a week, I would sit in the waiting room and take in the “sights” and sounds around me (seriously, people, leggings are NOT pants!). So many times my heart broke when I would hear another parent, under the guise of “advocacy,” just pick apart either physicians, nurses, or therapists. Perhaps some of this is because I am a nurse (BSN, RN–MSN 2013)? Perhaps some of it is because I am careful about what I say about other people?

When I was teaching nursing assistants at my last job, I would explain to them that they did not need to enter the field and tell other nursing assistants what was wrong in that specific facility.

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What a Special Needs Mom wants for Mother’s Day

This week, I’ve read lots of blog posts and memes about Mother’s Day. Some of them are pretty dead on accurate, and others hurt my heart. Lots of them are about what mother’s really want for Mother’s Day—things like for children to close the doors, pick up socks, and so on.

So as I was sitting here pondering how superficial many of these things were, I started to think about what I would want for Mother’s Day.

(Now, everyone will know my secrets)

  1. Health care perks! While I’m lucky enough to have a fairly good rapport with our doctors and specialists, I’d really like to have a punch card.
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Bull Fight

shows a bull fighter mid confrontation with a bull

The Bull Fighter courtesy of frank1030 on Flickr

When will I learn?

I think I have mentioned before how touchy our before school routine is. Getting through the necessary steps and out the door with a positive outlook for both mother and child is tricky at best. I should know better than to mess with the equilibrium.

Today right before we left for school I found the child shrugging into a cropped black “velvet” jacket with ruffles. This is one of her favorite new finds from the latest batch of hand-me-downs that are her size. She does have some interesting taste in clothes.

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Weddings (and other such events)

Tomorrow my brother is getting married.

In a quiet, small gathering.

On a boat.

At Disney World.

 

Now, while most people think this sounds romantic and lovely, I am a nervous wreck. My brother loves my son no matter what; however, if he decides to melt down or scream or narrate the entire event, I fear he’ll never speak to me again!

So, to make myself feel better, I tried to think of all the ‘What If’ moments that could happen, so that when something minor happens, I won’t freak out. It doesn’t make any sense to anyone but me, but that is OK.

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Counting the Grapes

I was counting grapes out of habit the other day as I was packing the child’s lunch. I guess I’ve done it for so many years that I continue to do it now even though I don’t need to. As I was inwardly laughing at myself my mind flashed to a day several years ago when one of my best mom friends was chuckling about it, too.

This was pre-twins. I can’t quite recall how old the child was, but I think she was not quite three yet. So that would be after I knew something was amiss but before anyone else really thought much about it.

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