Physical Therapy — 5 Minutes for Special Needs

Physical Therapy



It’s happening around here. Some of the counties near where we live have already returned to recess, brown bag lunch, and smiling teachers. We…start Monday.

Well, my daughter starts Monday. My friend’s children start Monday.

Jack. Not so much.

See, we qualified for Hospital Homebound (HH). Basically, this is a school within a school. It has its own principal, teachers, guidance counselors, etc. Three times a week a teacher comes to my house and hangs out with Jack. Speech therapy and Physical therapy will visit him at home as well. However, it’s under the confines of the MotherSchool, which is the elementary that we are zoned for. (You still following me?)

HH requires a doctor’s note, medical records, and an IEP–all of which we have. And by have, I mean, I have his IEP, but The MotherSchool hasn’t updated it since we moved and so, he technically has no IEP. After calls and emails and days of stress, HH called yesterday to tell me that they are ready, but we are waiting for MotherSchool to set up the IEP.

Wanna hear the kicker? Last night I got a call from Ms. Ruby, the bus driver. She wanted to know where to pick him up on Monday.

That’s when I almost lost my religion.

So, while everyone gets to go to school and have that first day of wonder, Jack gets to wait to see when they’ll do his IEP, and I get to worry that I’m going to get arrested for my truant kindergartner.

Who’s bailing me out?


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Moms Gone Mad!

I have tried…

When Jack was taking therapy a million hours a week, I would sit in the waiting room and take in the “sights” and sounds around me (seriously, people, leggings are NOT pants!). So many times my heart broke when I would hear another parent, under the guise of “advocacy,” just pick apart either physicians, nurses, or therapists. Perhaps some of this is because I am a nurse (BSN, RN–MSN 2013)? Perhaps some of it is because I am careful about what I say about other people?

When I was teaching nursing assistants at my last job, I would explain to them that they did not need to enter the field and tell other nursing assistants what was wrong in that specific facility.

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Special Exposure Wednesday – Dance Class

The boy attended Therapeutic Movement classes. This was the part he liked best:

That and the cute little girl in the class, 😉

special needs wordless wednesday

Share what you managed to capture this week. Please spread the comment love around. Thank you.

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New year to begin…

I know what your thinking…NEW SCHOOL YEAR?   How many days till school starts???  I have a friend that started counting the minute summer started.  I enjoy our homeschooling time together.  I love the beginning of a new year…the goals for the year, the dreams of what you want to work on, the reality of what will really happen.  The fresh Sharpened pencils, crayons (even though we have 12 boxes already), the paper, the books, the construction paper…the excitement…the adventures. 

This past school year offically closed today.  My son had his evaluation that we have to turn into our school system with our next notification letter for the upcoming school year. 

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Learning…I’ve not written about homeschooling yet so I thought maybe this would be a good time.  Homeschooling isn’t so typical for us, we have many challenges to get over.  We do use therapies as part of our daily routine (even if we are still on sabbatical from professional therapies at our local hospital).  We do a lot of reading…Last year we read 163 books (several times each).   This year we’re working on doubling that.  We’re in the 200’s right now.  Things that I have noticed lately are that my son appears to be more aware of his surroundings and is learning to place sounds. 

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Learning to ride…one step at a time…

A Cowboy Needs a Horse

Johnny lives in a big city, but has everything a cowboy could want
(Everything, everything)
He has a place to pan for gold
(Panning, panning)
And he has time to shoot a buffalo everyday
(Shooting, shooting)
And every night, he dreams he’s a cowboy riding the rangeFinally found the words to this song, it’s on a disney sing along VHS we have and we sing it all the time.  (well me & Tristan…and he seems to like it 🙂

Ridin’, ridin’ along…

Oh, a cowboy needs a horse, needs a horse, needs a horse
And he’s gotta have a rope, have a rope, have a rope
And he oughta’ have a song, have a song, have a song
If he wants to keep ridin’

Now a cowboy needs a hat, needs a hat, needs a hat
And a pair of fancy boots, fancy boots, fancy boots
And a set of shiny spurs, shiny spurs, shiny spurs
If he wants to keep ridin’

Oh, the fence is long, and the sun is hot
And the good Lord knows that a cowboy’s gotta keep
Ridin’, ridin’ along

So he gets himself a horse, and a rope, and a song
And he finds himself a hat, fancy boots, shiny spurs
And there’s nothing more he needs, or can have, or can get
If he wants to keep ridin’, ridin’ along

Spurs, shiny spurs
Boots, fancy boots
Sings a western song
And a horse
If he wants to keep ridin’, ridin’ along…

Tristan has been working up to the ridin’ for about 5 weeks now. 

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Got My Back Up

On Thursday, we had a great meeting with Precious’ occupational therapist, physical therapist and vice principal.  By ‘we’, I mean me, as DH was flat on his back; a victim of the same virus that has been plaguing our family for the last 4 weeks.

Precious’ teacher and her speech and language pathologist were both absent from the meeting, as one had an appointment and the other was sick.

The occupational therapist (OT) and physical therapist (PT) had both recently assessed Precious for the first time and they both seemed to understand pretty well where she is developmentally.  They both had new ideas for activities we can do with Precious to help her and they are incorporating these into the school. 

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The Domino Effect

For the last two years or so, we hadn’t had many appointments with specialists.  Precious doesn’t have any serious medical issues.  She’s got minor ear, nose, throat issues, so we go every 6-12 months, and she has dental issues, but these only require regular dentist appointments for now.

She has an undiagnosed congenital (she was born with it) issue.  It started out as low muscle tone and turned into a global developmental delay with a more noticeable cognitive delay.

A few months ago, we got a call from the geneticist, asking us to come in to be re-evaluated.  While we were there, she noticed we hadn’t seen the opthamologist for a couple of years. 

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Therapy Tools (part 2): PT

When J was about 16 months old her therapist suggested ankle-foot orthoses (AFOs).  J was just rolling over and wasn’t crawling yet.  She could bear weight on her legs with support and the therapist wanted her ankles and feet positioned properly when she was standing for therapy and in her exer-sauser at home.

J hasn’t seemed to care whether she’s wearing them or not.   So she doesn’t fight when we put them on her unless her muscles are exceptionally tight that day.  Then she will protest.  There are days I’ll wake J and her muscles will be extremely tight and then others she will be floppy like a rag doll.

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