Monthly Archives: April 2010

Who do you trust to care for your child?

As it is, it’s difficult to leave my son with “just anyone” because his tracheostomy and g-tube care require training. But what happens when the person trained cannot be trusted? I would like to believe that because someone is licensed, trained and “seems” like a good fit that they can be trusted with my child’s life. I would like to believe that the nursing agency has hired and screened candidates thoroughly.

Last week I found out the hard way that that is just not always true.

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Spina Whatida?

As many of you know, I just adopted a 15 year old young man named Ronnie. Ronnie is deaf and has spina bifida. Since my youngest daughter is also deaf, making sure Ronnie has all the appropriate supports isn’t new to me. But the spina bifida is. I have a bunch of questions. For instance,…

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Special Exposure Wednesday.

I’m so sorry about last week but things got on top of me and by the time I got it together to post for SEW it was too late. Here she is after port access went belly up. It was the first time I had to access her and we were both sad. She’s on…

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How do you get the stress out?

This weekend, I was feeling kinda stressed. I had a lot of work to do, Max had a cold and was getting whiny, and I’d had barely any time to myself all week long. So I made Dave take the kids out for lunch so I could have the house to myself. Being alone in…

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Magic Marker Monday — Window Art Therapy…

“It took me four years to paint like Raphael, but a lifetime to paint like a child.” ~Pablo Picasso Welcome to Magic Marker Monday! If you haven’t heard about Magic Marker Monday yet, click here and then hurry right back…   It’s not often I give in to pleas for infomercial items, however when our…

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Burning

He sat across from me giggling like he was getting away with something. I just watched over the top of my menu. I knew he was up to something, but I wasn’t sure what. And what he didn’t know, is that I decided not to let ANYTHING bother me that day. I just woke up…

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Mother of Quadruplets, one with autism, tells her story.

I have made some of the greatest friends because of Matthew, and I have learned a lot from them. Robin Hausman Morris is one of those friends and she has a most unusual perspective, so unusual that I’ve been trying to convince her to write a book. Robin started her career as an actress in…

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The Doctors does a whole show on Autism – tomorrow 4/23

April is Autism Awareness Month, and approximately 1 in every 100 children is diagnosed with autism. On THE DOCTORS airing Friday, April 23, the doctors welcome actress Holly Robinson Peete and her husband, retired NFL quarterback Rodney Peete, who have an autistic son. The Peete’s recount the heartbreaking day their son RJ was diagnosed with…

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Learning to tackle challenging situations

Last summer I called a few tumbling/gym type places to see if Austin would “possibly” be able to go to learn how to safely tumble. I called them because, I have to admit that occasionally I am guilty of not challenging Austin enough in certain situations. There are some things that scary the beejeebees out…

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Feeding Frenzy

Both Corey and Jessica have some strange obsessions with food, and I don’t know how to help them. I had hoped that enough time in a stable, loving home would let both of them know that food is something they don’t have to worry about. But still it seems that they do. Corey’s and Jessica’s…

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