My new son, Ronnie, is having surgery in two weeks – significant, scary surgery. I’ve been through many significant surgeries with my daughter, Ashley, including brain surgery twice, but since Ronnie just joined my family three months ago, I have no idea how THIS surgery will go. With Ashley, I can predict exactly how she…
Monthly Archives: July 2010
Special Exposure Wednesday
Sorry we’re a bit late we are in the hospital at the moment. She’s almost discharge worthy. Onwards and upwards, my friends. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also posting at Three Ring Circus.
Phoning it in
It’s my first week back to 5MSN. Forgive me for my haste. I wanted to post something poignant about neuro-developmental learning but life got in the way. My article goes up at 4 pm Eastern time. I’m on the west coast, so that’s 1 pm my time. Today is not working for me. Here’s my…
How has having a kid with special needs changed your personality?
When we were in the NICU with Max, following the stroke he had at birth, there was a Debbie Downer doctor we had to deal with. One day, I got into a bit of a personal conversation with her. “I feel like this is going to change my whole personality,” I said. “It will,” she…
The Beat Goes On
Is it just me, or is it odd the way your world just stops? The lab results, the diagnosis, and the hospitalizations … the realization that your perfect child is sick. The words taste bad in your mouth. Disease. Incurable. Rare. More questions than answers, more doubt than faith. You turn to the nearest window,…
Adaptable
When my Tim was in the academy, the cadets learned the importance of the nine core values. I would wager a bet that my Tim lived by those core values before he entered the academy, but having them drilled into his head and tying every action he took to one of those core values really…
Summer Book Club: Cowboy and Wills by Monica Holloway
As promised, I am back to discuss Cowboy & Wills: A Remarkable Little Boy and the Puppy that Changed His Life by Monica Holloway, a book that I chose for an ad hoc summer book club. I loved it so much that I dove right into Monica’s first book, the critically acclaimed Driving With Dead…
What do you do when your family doesn’t accept your special needs child?
I have been very lucky that my immediate family is very loving and accepting of Austin. At home he is not treated any different than any of the other grandkids. When we venture out into the world well, there it is a different story. But home is our soft place to fall. Maybe it’s because,…
Freedom Hopes
This Fourth of July week I’ve been thinking a lot about the word ‘freedom’ as it pertains to my children with significant disabilities. It’s not flags and fireworks I’m thinking about, but rather the freedom of choice. I want my children to be able to make choices, to live life their own way. I want…
Special Exposure Wednesday.
Accessories are a vital part of every little girl’s wardrobe! Unfortunately (or fortunately for the snap happy Mummy) we seem to have our seasonal accessories a little mixed up. Apparently, she was off to the beach, this day, in her beanie and sunnies and was changing her name to ‘Ratatouille’ for good measure. I guess…