Tag Archive: acceptance

Knights Of The Gridiron

Chivalry is dead, or so we’ve been told. Knights exist only in legends and movies. Although there are still titular knights today, they are a far cry from the knights of old. Knights of the medieval era were asked to protect the weak, helpless, defenseless and fight for the general welfare of all. They were…

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Daffodils at Night

I made a tour of every store I could think of that might have potted daffodils. The kind you buy as a hostess gift for Easter brunch…or whatever…but this was even a little late for that. Two nurseries, the drug store, and three grocery stores later I finally found a little pot of miniature daffodils. I wasn’t sure they were quite what she was after.

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Different or Fancy?

It was a relatively easy, but somewhat mind-numbing task to accommodate the child’s fixed preferences at her place setting. We don’t have quite enough “matching” flatware pieces to make it to the next dishwasher run. We tend to run out of teaspoons and case knives before plates and bowls. Over the years of combining two…

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Special Exposure Wednesday – Big Blueberry Eyes

The first thing I noticed about Kayla is her big blueberry eyes. She has the biggest, bluest eyes I have ever seen. When she smiles, they just seem to light up. The fact that she has Down Syndrome just seems so secondary to who she is. Get to know Kayla more in her mom’s own…

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We’re all Different…We’re all the Same

I’m writing a story with the child about the things that make us different from each other. I’m hoping this will be a soft entry to explaining her challenges and her triumphs over them in a way that is positive and yet open and honest. We’ve already talked about how even the people in our…

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The Leap From Here to Acceptance

This week, I travel across the country to She Speaks, to press into my dream of writing a book. In the program, we’ll each share our story. This is part of mine – and I’m excited to share it with you, my fellow parents-in-the-trenches of special needs. ———————- “Curiosity is …another name for Hope.” ~Augustus…

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I Know the Answer…Yet, I Ask Anyway

“Out of curiosity, how does his version of ESES (J’s form of epilepsy) compare to other kids you’ve seen with it?” This is my question to the neuropsychologist in the neurology department – designated specifically for epilepsy patients – that we met with yesterday. I don’t know why I ask these questions. We have our…

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The ThiRd Rail

I’m still trying to figure out twitter. Can’t decide if it’s really useful for me or not. I’m trying out HootSuite which makes it more accessible, but still kind of overwhelming. Anyway last night as I was scrolling through the most recent tweets two words jumped out at me. Perhaps they would have jumped out…

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We All Want the Same Things

I attended a gathering of parents with special needs children a couple of nights ago. There are a lot of things stirring in our community that bore discussion, but this phrase, spoken by one of the Dads there stuck in my head. We all want the same things… Our children may be different in various…

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Happy Mother’s Day

When I became a mother in 2002, I truly felt transformed. The birth of my son was an empowering experience; primal and intense and painful, but giving birth to him and becoming a mother for the first was truly the most incredible moment in my life. Having my second child in 2003, at home, and…

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