Tag Archive: taking care of caregiver

It’s the Little Things

There just always seems to be too many other more important things to do. Our time and money are both limited right now, so if the kids need something, it comes first. But does this mean I should neglect myself completely? I think not, and I got the lesson in a strange way.

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This Year’s Medical Goodie Bag

Alternate Tylenol and Ibuprofen every two hours Alternate daytime / nighttime cold / cough remedy OR Allergy antihistamine – whatever seems to work well or that particular kiddo Vicks Vapor Rub (aka Mentholatum for other ‘old school peeps’ like me) on the chest and slathered about the feet at night with socks Warm mist humidifier…

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The Hardest Word I’ve Ever Said

Seven years. Over a thousand hours at hospitals and specialist appointments. Countless interventions at home. And it turns out the most important word to help my daughter’s treatment is this: NO. No… we’re not doing a nineteenth round of medication adjustments. It’s time for hospitalization. No… I won’t take her home from the hospital and…

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Waiting…. Waiting…. Waiting….

I don’t like waiting. Which is kind of ironic because I’m a mom, and a mom of multiple developmentally delayed kids. For years we’ve been waiting with one of our daughters – waiting for meds to kick in, for her moods to stabilize, for her mind to find balance. At our meeting with the counselor…

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Food is so frustrating! {with Made to Crave book giveaway}

As special needs parents, we give up a lot. Our time. Our energy. Some of our relationships. Our vision of what might have been our lives as a family. With all the things we give up, it would be really darned nice if we didn’t fall under the same rules of slowing middle-aged metabolism, so…

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4 Reasons to ask for help, even though it’s a pain in the neck

Okay, I’ve got high needs kids. But I’ve got my own problems too, and I’m really good at ignoring them. Which becomes impossible every once in a while, especially if I’ve been ignoring the scoliosis and arthritis in my back. Recently I messed up my neck and back (again) and went in for a massage…

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