Tag Archive: wheelchair

What a Special Needs Mom wants for Mother’s Day

This week, I’ve read lots of blog posts and memes about Mother’s Day. Some of them are pretty dead on accurate, and others hurt my heart. Lots of them are about what mother’s really want for Mother’s Day—things like for children to close the doors, pick up socks, and so on. So as I was…

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Staring

I try to teach my kids to be curious, but not to stare. To be kind, but not condescending. To be honest, but reserved. Last weekend, we made a trip to the outlet malls about an hour away from our home. The boys were both in desperate need of soccer shoes. Isaiah was in even…

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Friday Family Fun Night

One of the reasons I love our weekly Friday Family Fun Night… …is these memories. These moments when they seem to forget all that life has thrown at them and they are just brothers and sister. They play. And laugh. And love. They hold hands and help each other. They do what they can to…

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New wheelchair

I stood with her preschool teacher and watched as Esther-Faith climbed into the “new” wheelchair. It wasn’t her chair, but a loaner while her chair was in the shop. Her chair is red. The loaner is blue. Her chair has a tiny embroidered ladybug on it that Mimi gave her the first day she had…

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New and routine

It feels surreal I watch her bravery slip as her lips quiver and her eyes fill with tears while Nick twists and turns measures and adjusts Am I dreaming? Watching her stiffly walk as her hair moves in the breeze she creates assessing her mechanized steps for the smallest abnormality or trouble or quirk Isn’t…

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Through her eyes

My brother bent his knees, jumped as high as he could, and spun around in the air. He landed and fell to the floor laughing. It made me laugh, too. He said he was dancing. My other brother bounced his head, wiggled his arms, and shrugged his shoulders with the music. He stood up and…

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