Special Exposure Wednesday. — 5 Minutes for Special Needs

Special Exposure Wednesday.

by TiffandIvy



                               

transfusion3web

The weekend for Ivy was really very rough.

She needed a blood transfusion and I was thankful, once again for all of the people who

selflessly donate.

I was also told that it was kind of weird taking photos when Ivy is in the hospital.

I don’t know, perhaps it is.

For me, I think it’s wanting to chronicle these times,

to have them for her and for me.

What do you think?

I don’t ever photograph when Ivy is acutely unwell, only when she is stable and safe.

Do you think it’s bizarre?

Got something to share?

Why don’t you join in this Special Exposure Wednesday.

Please remember your comment love at each link you visit.

Also posting at Three Ring Circus.

Email Author    |    Website About TiffandIvy

Bringing up seven kids has led to in depth knowledge of asthma, autism, fetal alcohol syndrome and drug induced developmental delay, immune deficiency and autoimmune disease, ectodermal dysplasia, neonatal death and cardiac defect. Despite all of that, I didn't know I was about to start the ride of my life with the illness of my youngest daughter, Ivy.

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1 Susan/SC May 25, 2010 at 10:18 pm

I don’t think it’s weird at all – it’s a big part of your life and hers. I consider myself blessed to be able to share in a little piece of it from afar.

2 Alison May 25, 2010 at 10:41 pm

I don’t think it is bizarre – I like to record everything that has happened to Ashlea. It helps me remember how far she has come.

3 Florence May 25, 2010 at 11:04 pm

Nothing bizarre about it. I love seeing her pictures, no matter where she is. Of course, I prefer when she’s well but we all have to take the bad with the good.
I agree with Alison. It’s a reminder of how far she has come.

4 Ellen May 25, 2010 at 11:05 pm

It is not bizarre in the least. You take such beautiful, loving photos of her. It is a tribute to Ivy.

5 Kirsty May 25, 2010 at 11:12 pm

Bless! I don’t think it’s bizarre at all! You can use it as inspiration for her as she grows older. If you can do this you can do anything so to speak! Hope she’s feeling better soon!

6 rickismom May 25, 2010 at 11:45 pm

Not bizzare at all, but then, you are getting your poll results from a bunch of camera-totting moms!

7 Amy S May 26, 2010 at 12:13 am

I don’t think it’s bizarre at all. We wanted to take pictures of my brother when he was in a coma. Sure, he was hooked up to machines and all, but it might have been the last time any of us were with him while he was alive. The hospital wouldn’t let us because my brother was over 18 and hadn’t given his permission. We were beyond upset. But thankfully my brother lived.

8 Kristin May 26, 2010 at 1:06 am

Personally, I don’t know what I would have done without seeing bloggy photos of other kiddos recovering from open heart surgery before mine went under the knife. It prepared me for what I was about to see. I find it very therapeutic 🙂

9 Stacey Harris May 26, 2010 at 1:12 am

I have some photo’s of when my daugther went thru e coli… and the machine for the dialysis– They are nice to look back at and see how far we have come.
I think it’s good to take pictures– you can see your love for her shining thru!
Thanks for sharing!

10 Coley May 26, 2010 at 1:36 am

I don’t think it is weird at all. Heck, some people take photos at funerals! Your just trying to document this aspect of your daughter’s life.

11 Beverly May 26, 2010 at 2:37 am

I think it is fine. you are taking photos of your life and that is not wierd.

12 The Gang's All Here! May 26, 2010 at 9:15 am

I don’t think it is weird at all. Rather, if you studiously avoided all picture-taking of this part of her life, that would be weird. It would convey all kinds of unhealthy messages about her and her experiences. Keep on with what you are doing. It’s part of who you are as a family and Lord willing, you’ll be able to look back at these pictures someday and give great testimony to the practical, every day miracles that He performed for you all along the way!

And she’s beautiful. Those cheeks and those curls are captivating. Who WOULDN’T want to cature those forever?!

13 Amanda Daybyday May 26, 2010 at 9:22 am

Also don’t think it’s weird. It’s her life! She needs to be able to look back and remember it. I wish I had more pics of when mine was in the hospital.

14 Jen May 26, 2010 at 11:00 am

Not bizarre. On the contrary, why should you only take pictures that capture a portion of her life?

What’s really bizarre is the things that come out of even the best nurses’ mouths.

15 Janice (5 Minutes for Mom) May 26, 2010 at 12:35 pm

Thinking it is bizarre is WHAT is bizarre!!! Who on earth would say that to you?!?!? OF COURSE it isn’t bizarre!!!!

This is your child, your beautiful child. This is her journey and you want to celebrate and record her life, no matter what pain comes along.

AND your photos are an inspiration and a blessing to all of us who see them!

YOU KEEP TAKING THOSE PHOTOS!!!!!

16 Peanut's Mom May 26, 2010 at 12:48 pm

As everyone else has said, definately not bizarre! That is your life, her life. Photo awasy!

17 Adoption Of Jane May 26, 2010 at 1:45 pm

I agree with Janice… it’s more bizarre to think it’s bizarre. She looks so sweet laying there. I am glad she got the blood she needed.

18 Deana May 26, 2010 at 1:59 pm

I hope Ivy is feeling better!

We have photos from every hospital stay we have had. It’s as much a part of Max’s make-up as his first trip to the ocean, or playing with toys.

19 angie May 26, 2010 at 2:15 pm

a very sweet picture love it and love the fact that you are taking the pictures to create a timeline like of events

20 Mel Fraase May 26, 2010 at 2:28 pm

Nope. Not weird. I think catching a picture of every moment, good or bad, is like journaling without having the time to write. If you see the photo later, the words come back. If you forget to document things, good or bad, it seems they fade. I’m sure she’ll be interested in knowing everything that happened, not just all the happy smiley pictures!! You’re doing fine!

21 Michelle & Kayla May 26, 2010 at 2:40 pm

I don’t think its weird at all – like you said it chronicles the time you’re both in right now. I’ve seen numerous families taking pics of hospital stays. She looks so peaceful; hope she feels better soon.

22 Michelle May 26, 2010 at 5:22 pm

I’ve had similar comments with our long hospital stints. I’ve tried hard not to be annoyed by them.

Typically, I respond with something like, “Well, this is our life — perhaps it does seem weird to you. Sometimes it seems weird to me too. But I love my little girl and these are our memories, for better or for worse. And I insist on enjoying my old age with full photo albums.” 😉

Keep snapping photos, Tiff. I for one don’t think it’s weird at all. I think Ivy’s growing up with a wonderful sense of who she is and how very much she’s loved.

You do an amazing job of carving out little bits of beautiful and weaving together a childhood for your kiddos in some of the toughest circumstances imaginable.

Hugs,

~Michelle

23 Amanda's Thoughts May 26, 2010 at 6:57 pm

Thats just adorable love it

24 TiffandIvy May 27, 2010 at 1:53 am

Wow, guys!
Thank you for that wonderful response.
It means so much.

25 KDL May 28, 2010 at 1:54 am

All I can say is no one thought it was strange when we were snapping photos of our newborn premies with all sorts of wires and tubes connected. We took photos just about every day, even under the bilirubin lights. I have those photos in their baby books and although they are a bit hard to look at sometimes, it is a piece of their lives that they will want to know about and see for themselves when they are older. I don’t know why your situation would be any different. I don’t know much about you and Ivy, but I know she is in the hospital or under treatment often, so if you didn’t take pictures all the time you wouldn’t have nearly as many pictures of your beautiful girl.

26 Dawn June 1, 2010 at 11:48 am

Definitely NOT strange. You have a gift. You take such beautiful photos. I see nothing wrong with “journaling” your life through photos. As a matter of fact, I look forward to the photos that you share.

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