Category Archives: Family Life

Disclaimer: I am writing this as a woman, so it’s going to have a womanly slant. No, I do not hate men. Yes, I know there are plenty of great Daddies who do a good job of helping out–and I salute you, Good Daddy!   I spent the majority of the past 3 weeks in…

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Christmas Wonder for My Kids with Down Syndrome

This year, like the past seven, we’d been telling my live-in-the-moment Boys (identical twins with Down syndrome) for weeks that Santa Claus would soon be paying us a visit and leaving toys under Christmas trees all around the world for good little girls and boys in honor of Jesus’ birthday. “Why?” Because Jesus is all…

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Attitude Adjustment

Happy November, Friends! (How did this happen? Wasn’t it just January?) The past few months have been sort of rough for us. For some reason, it seems like everything we’ve done, or tried to do, went horribly wrong. When things don’t go the way I envision them, I tend to get–shall we say–moody? Maybe not…

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How to Hold it Together When the World Falls Apart

Hi you guys! This is basically my week again…only different surgery on the stomach…I’ll update you later…   ****************************************************************************     I get tired–the kind of tired that makes your bones ache. Sometimes, I get grumpy too. Hey, don’t we all? In this ever-winding road of special needs parenting, I find myself often in a…

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The Chicken

Life sucks sometimes, right? Yeah. In the past few weeks, lots of heavy stuff has been going on (in my world and in the world at large). We’re still having testing done on Jack for school. My daughter is hormonal and vacilates from angel to devil in mere moments. I’m struggling to muddle through my…

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Testing….

Hi there! Remember me? (don’t answer that…I’m beginning to feel a foreigner in my own land!)   So, here’s the current score. School District: 5, Jack: 3. It’s looking rough out there. His IEP was completed a few weeks ago. Because he turned 6, he has to be “transitioned” from the developmental delay label to…

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Being the Parent

I sat in the developmental psychologist’s waiting room just simply observing the behavior of the parents. Some were busy filling out paperwork, one was reading a book, another was totally in to playing Angry Birds. Not a single one was watching their child. I watched these children, who were obviously there for a reason, as…

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Hospital Homebound

School. It’s happening around here. Some of the counties near where we live have already returned to recess, brown bag lunch, and smiling teachers. We…start Monday. Well, my daughter starts Monday. My friend’s children start Monday. Jack. Not so much. See, we qualified for Hospital Homebound (HH). Basically, this is a school within a school….

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Always Sad to Say Goodbye

The child reminded me of a poignant moment from her babyhood the other day. She was maybe three years old at the time, and still very much a baby with her speech  and social delays. I was with her at our church for some reason – going to a meeting or something and she was…

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The Bubble Bursts…

Sometimes, I lose my words. Like someone popped my beautiful bubble that I worked so hard to get right. Or I feel like the sky is closing in on me. Actually, I feel like I’m the kid with the black cloud that only rains on me. (Pity party, table for 1?) So many times, on…

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