Bringing up seven kids has led to in depth knowledge of asthma, autism, fetal alcohol syndrome and drug induced developmental delay, immune deficiency and autoimmune disease, ectodermal dysplasia, neonatal death and cardiac defect. Despite all of that, I didn't know I was about to start the ride of my life with the illness of my youngest daughter, Ivy.
In our house, dress ups regularly include ‘cannulas’, ‘bandages’ and hospital type play. Here is Noah with a sore head, a broken leg and a bandage over his canulated arm. He looks too well to be hospitalised, wouldn’t you say? Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your…
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You wouldn’t know to look at her but yesterday was not a great day at the Infusion Lounge. Here she is, enjoying a small moment of freedom, de-accessed from her lumen. Before all the trouble started. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each…
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We’re not big Valentines Day people here but we always celebrate love. Hope your world is filled with light and love however you find it. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
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IVIG day and port day. She looks tiny in that huge infusion chair. Always courageous though – they had to reaccess her four times yesterday, before the silly thing would flush and she didn’t even cry. I think if it were me, I would be howling. Got something to share? Why don’t you join in…
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Mal loves his Summer haircut. (Don’t worry the Mohawk will be a distant memory when he goes back to school next week) He so desperately wants to be a wrestler when he grows up. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link…
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Ivy spent the afternoon at the beach this weekend just gone. For a kid who has forced isolation for the Autumn and Winter months, Ivy is making the most of the outside this Summer. Got a special moment to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each…
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Malachy enjoys the Summer experience on the Slip and Slide, very much. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
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Shhhh. There are bedtime garden fairies at the bottom of my garden. Ivy enjoys the early Summer evening just before bed. Got something cute to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
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Hope you have stacks of fun this holiday season! Wishing you peace and joy. From our family to yours. Got something special to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
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It’s beginning to look a lot like Christmas round these parts. Ivy the littlest of my elves. Hoping that this Christmas is spent outside of the hospital and that she is well. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link…
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