Hurricane season is something that my family faces every year. Around June 1st, I start stocking up on hurricane essentials: water, batteries, candles, etcetera. Given Zoe’s specific medical needs, we take care to ensure that we can meet her needs in the event of a crisis. If you live in an area that is prone…
Monthly Archives: August 2008
The Littlest Heroes Project
At Primary Children’s Hospital, when a child is admitted to the PICU, his parents are given a short list of questions to answer about their child. The answers are then made into a fun poster that lets hospital staff get to know your child on a more personal level. One of the questions asked is…
RTFM
Again this morning, I had to explain to the aide on my daughter’s school bus that my daughter is deaf and blind. The explanation came after that aide said in a very helpful voice of normal speaking volume “Hi Ashley, do you need help?” The aide seemed a little annoyed when Ashley did not answer…
Plays Well With Others
Yesterday Parker had the opportunity to play with a couple of friends, who along with their parents, stopped by for a quick visit. My heart soared as I watched Our Brave Hero butt hop over to join in the playing that was happening in our family room. Parker has decided that hanging out with friends…
Special Exposure Wednesday ~ SOOC Blur
For the details of how to join the weekly fun, please read What is Special Exposure Wednesday? Have you seen a precious face? Capture it in a photo and win our Special Exposure Model Search Photo Contest. SOOC – straight out of camera, no editing – like life. A moment happens. You plan and it…
Parents, Permission Granted
Why as parents do we feel that we need permission from someone in order to take a day off? As much as you may want to believe you can, you cannot continue nurturing, effective parenting without time off for yourself. Somewhere, sometime when least expected, you will crash…hard…and you will not be able to deal…
Try This Tuesday #5: Preparing for Kindergarten
My son has been showing some nervousness about starting kindergarten next week. Although there is an open house tonight for the students from his class and their parents, I was concerned that it would be too overwhelming for him to really take in much information. After getting some input from the autism consultant last week,…
Resources for Families with Food Sensitivities
Adopting a gluten-free and casein-free diet presents a challenge to most home cooks. Fortunately for us there are many web resources available, providing tons of information, advice, and yummy recipes to sample. Here are a few worth checking out: GFCF Diet: www.gfcfdiet.com –this online support group has an excellent directory, featuring support groups, lists of…
Caring, Curing and Aiding Pediatric Research
Parenting children is not an easy job. Parenting children with special challenges adds more complications to the task. Parenting children with chronic or life threatening medical conditions is frightening. While we as parents need support and education, we must not forget the fact that our children do, too. Whether physically healthy, living with special challenges…
An Interview With Myah’s Mom
Just who is this sweet blonde cutie pictured with her equally lovely Mom? Let’s find out! Tell me a little about yourself and your family. My name is Lori. My husband and I have been married for 10 years and have 2 beautiful little girls. I have a degree in Health Science Education and was…