Tag Archive: RTC

The Hardest Word I’ve Ever Said

Seven years. Over a thousand hours at hospitals and specialist appointments. Countless interventions at home. And it turns out the most important word to help my daughter’s treatment is this: NO. No… we’re not doing a nineteenth round of medication adjustments. It’s time for hospitalization. No… I won’t take her home from the hospital and…

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Wounding Words, Wondrous Words

I almost couldn’t hear it when she spoke. Words uttered under breath, understood loud and clear. “You’re so late,” she rolls her eyes, clicks her tongue in disapproval. I smile anyway, pass by, walk my daughter to class. Fifteen minutes after the bell rang, we’re entering campus.   The words rattle me again. But not…

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Balancing Journey vs. Destination Mindset With Our Kids

“It is good to have an end to journey toward; but it is the journey that matters in the end.” – Ursula K LeGuin I think we as parents of special needs understand this more than any other parents in the world. And even still, I fight this truth so much. As someone who’s good…

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Helping Siblings Handle Loss

Yesterday was a Labor Day my family won’t soon forget. It was the first weekend (and holiday) since one of our daughters was admitted to a residential treatment facility for mood and developmental issues. Sure, we did the usual Labor Day things: played games, bar-b-qued hot dogs and spent time with extended family. But it…

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