Recently I met with the local school district School Psychologist and our Early Intervention coordinator for the EI/preschool transition meeting. I cannot believe that Austin will be going to preschool in 5 months (at age 3).
I thought I had a fairly good grasp of what type of school program and support he needed. Now I am not so sure. But where I find myself really lacking is what kind of support the school can and will offer for a medically fragile child.
I’m quickly finding out they don’t “offer” much. It seems I need to ask for every possible thing under the sun and then somehow prove why he needs what I am asking for. Has anyone else had that experience?
I’d love to hear from you. Do you have any words of wisdom, encouragement, resources?
The actual IEP is in 4 months so I have all summer (between surgeries) to get the right answers and go in armed..for what I hope will not be a battle.
Janis chronicles her son’s medical journey at Sneak Peek At Me. She is an advocate for medically fragile children and families living with a rare disease diagnosis.