She may say she flies by the seat of her pants, but if that is true, Niksmom (Beth) is a really good pilot! Join me in welcoming her to our Sunday interview series! Tell me a little about yourself and your family. My first name is Beth; online I go by “Niksmom.” I am a…
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Author Archives: Deborah
In addition to her job as a computer engineer and her single parent responsibilities, Deborah is president of a state-wide family support group for families whose lives are touched by deafblindness, and is a tireless advocate for all people with disabilities. She writes at Pipe Cleaner Dreams and her writing has also been featured in local magazines and newspapers. Ashley’s story has also been chronicled in a book by Jonathan Mooney titled Short Bus Stories.
Flying by the Seat of Her Pants! – An Interview with Niksmom
Written on February 1, 2009 by Deborah
in Family Life
Chicken and Mashed Potatoes with a Side of Guilt
Written on January 28, 2009 by Deborah
For years, 18 to be exact, I have been made to feel guilty for having the television on while my family had dinner together. I really felt it was an accomplishment to have all my children sit down as a family for dinner seven nights a week, and we continue that practice even now –…
in Family Life, Feeding
Mama on the Edge – an Interview with Queen Mara!
Written on January 25, 2009 by Deborah
She’s irreverant – she’s hilarious – and she is surviving while raising two sons on the Autism spectrum. As the mother of four teenagers myself, Mama Mara is my hero! Tell me a little about yourself and your family. Most people in Blogland know me as Mama Mara, or Queen Mara for those of a…
Creature Discomforts
Written on January 21, 2009 by Deborah
I love these ads that are running in the United Kingdom. I suggest you take a few minutes to explore the Creature Discomforts website, especially the information about the people behind the characters. The ads are based on the work of the creators of Wallace and Gromit, and the goal of the ads is to…
Celebrating Perfect – An Interview with One Sick Mother!
Written on January 18, 2009 by Deborah
Please join me in saying hello to “One Sick Mother”. My favorite thing about this interview is how she describes her children – “perfect”! Tell me a little about yourself and your family. I am 41 years old and originally from Ireland. I met my Scottish husband in London and we moved to New York…
in Advocacy, Family Life
Community-Based Instruction
Written on January 14, 2009 by Deborah
One of my pet peeves with our special education system is the concept of community-based instruction (CBI). Such community trips are a regular part – actually a weekly part – of the curriculum for my children with special needs. And, I believe that is true for almost all school districts serving children with special needs….
Marielle’s Advocate! An Interview With Monica
Written on January 11, 2009 by Deborah
I met one of the cutest little girls I have ever seen at a family support retreat last summer. Her name was Marielle, and her Mom and Dad are equally as special as she is. I know you will enjoy meeting them as much as I have! Tell me a little about yourself and your…
in Family Life
If Only I Could Make It Stop
Written on January 7, 2009 by Deborah
Your day started off rough, didn’t it my sweet Ashley? Just like so many other days recently. Although you wake up with a smile on your face, it’s not long before a seizure steals the morning joy from you. I know you don’t understand the funny feelings in your head just before the seizure erupts….
Oceans Full Of Love – An Interview With Mona
Written on January 4, 2009 by Deborah
One of my favorite places in the world is the Outer Banks of North Carolina, and one of the things I enjoy most while visiting there is looking for sea glass. So, I felt it was fate when I stumbled upon a blog with the title of Sea Glass, and found that its author was…
in Family Life
Can’t Go There? Can’t Get In?
Written on December 31, 2008 by Deborah
December has been my month of inaccessibility. Throughout my 12 years with Ashley and her wheelchair, we have often gone places that were not accessible. When Ashley was small, it wasn’t a huge issue – I could just pick her up and carry her over a curb or up a few steps. That is impossible…
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