Author Archives: Lee

I am the father of a 22 year old daughter with a rare metabolic disorder called Propionic Acidemia. I hope to provide a "fathers view" of special needs parenting and maybe engage and encourage other men who face a similar challenges with their special needs child. Thanks for following me.

Tube Wars

For the past 20 years my daughter Melissa has used a NG tube as her primary method of feeding. There has always been much controversy about the use of NG vs. G-Tubes. My story offers our experiences.

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That Fateful Day

It started as a textbook pregnancy. It ended with the emergency transport of our four day old comatose baby to neonatal ICU at the University of Minnesota. There we discovered that our Melissa has rare metabolic disorder. This was the first day of what would be my 21 year journey as the father of a…

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