Author Archives: Lee

I am the father of a 22 year old daughter with a rare metabolic disorder called Propionic Acidemia. I hope to provide a "fathers view" of special needs parenting and maybe engage and encourage other men who face a similar challenges with their special needs child. Thanks for following me.

Let’s Talk About SEX

Long considered a TABOO subject, sexuality among the disabled is rising into public view because many special needs adults are enjoying an active sex life. As special needs parents, what should we know about this touchy subject? What can we do today to prepare our children for a healthy sexual relationship in the future?

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Is Your Medical Team Super Bowl Bound?

Without blocking, receiving and tackling, even the most talented quarterback will be on the sidelines during the Big Game. As special needs parents, we are on a team with the medical professionals who care for our children. What position do we play? How can we make our team Super?

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Our Night Out

You need a break! Caring for a disabled child is often an intense experience. Day after day, month after month, year after year the battle continues. Respite offers care-givers a much need break in the anxiety and stress of care giving. Make a plan for your getaway today!

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Careers for Special Adults

If you are a parent of a young child with a cognitive impairment disability, you may not yet have given much thought to their life as an adult. But the time will come when you will be helping them make decisions about their “life plan”. Here is how we handled it.

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Traveling With A Special Needs Child

We are a mobile society. But with ever-increasing air travel security post 9/11, we no longer take travel for granted. Every passenger must pack luggage according to strict rules. We all endure the perils of personal screening. But what if you are traveling with a special needs child. Here are some resources that may help.

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Where Did our Friends Go?

For us, one of the most surprising and disappointing aspects of parenting a special needs child was the loss of our friends. It seems strange that when you need them the most, they are nowhere to be found. Where did they go … and why?

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Ho Ho Home for Christmas

Remembering one Christmas that we spent in the hospital.

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Open W I D E

Dental issues. These are among the many challenges that parents of special needs children and adults deal with every day. Dentist visits and tooth brushing can be especially challenging for those with an oral aversion or cognitive impairment and behavior issues. Here are my experiences.

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The Nail That Sticks Out is Hammered Down

Advocacy is among the most important things a parent of a special needs child can do. Where should we advocate? How can we be more effective? And why does it seem like we battle endlessly against “the system”? Here are some thoughts based on 20 years of personal experience.

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Lean on Me — A Caregivers Anthem

Music—the soundtrack of my life. Certain songs hold special meaning because they deliver a timeless message. The 1972 chart-topper LEAN ON ME by Bill Withers is one of those songs. Caregivers, listen closely. Then reach out for help when your load becomes too heavy to carry alone.

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