Author Archives: Lee

I am the father of a 22 year old daughter with a rare metabolic disorder called Propionic Acidemia. I hope to provide a "fathers view" of special needs parenting and maybe engage and encourage other men who face a similar challenges with their special needs child. Thanks for following me.

Family Game Night

When parents play games with special needs kids it can give them much needed self-confidence while building a strong family bond. It can also help reinforce social skills, strategy development, emotional control and more. Make a date with your family and break out the games tonight.

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Journaling as Therapy

Parenting a special needs child can be confusing and frustrating. Studies show that people who journal gain a better understanding of themselves and their life struggles. Consider spending a few minutes each day to reflect and then pick up a pen and start writing. You’ll be amazed how it can help.

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And What About GOD?

People with cognitive impairment struggle to understand concepts. So how can we explain to them the ultimate concept … GOD? If spirituality is important to your family, helping your child understand God can be a life-long challenge.

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Newborn Screening Saves Lives

What once was a nationally-mandated test of newborns for six inherited diseases has now expanded to include as many as 100 disorders thanks to new technology. Yet not every state tests for every disorder. Early detection and treatment saves lives.

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Take the High Road

I have witnesses a worrisome trend—couples divorcing after their special needs child reaches age 18. When the mom retains custody of the child, what is the continuing responsibility of the father? Will he remain involved in the life of the child? Will he continue providing financial support? Will he take the High Road?

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Living on Borrowed Time

Medical advances are a gift of life. Today, it is no surprise that a baby born with a life-threatening medical condition survives. Yet we wonder about the life expectancy of this new “saved generation”. Are they LIVING ON BORROWED TIME? Don’t worry. Just cherish every moment of every day that we share with them!

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Healthcare ALERT

As special needs parents we must keep informed about developments in health care coverage. Regulators are working on new rules that define coverage for 2014 and according to this news report their work may well affect our kids.

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Men Who Man Up

Have you ever watched a man with his special needs child and said to yourself … he is a wonderful father! I have. And I wonder, what is his secret? He seems to be just an ordinary man, doing extraordinary things. Can I learn from him?

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Sexual Abuse

Sexual abuse of vulnerable children and adults is real. In today’s final blog entry on Sexuality and Special Needs, we review this problem and offer some tips that can help protect the ones we love.

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More Sex Talk

Today we continue our conversation from last week regarding sexuality and special needs adults. This installment will covers “having the talk” and “safe sex and contraception”. Even if your child is young, this is information that you should want to know as a special needs parent or guardian.

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