Recently it became obvious to me that special needs parents often speak to each other in code. I suppose it has always been around and is often used in medical support forums where everyone is speaking the same lingo. You know it. It’s the shorthand: Neuro, Pulmo, CHD, Mito, OT, PT & CI, just to…
Category Archives: Advocacy
Fostering Love
Many of you know that I have adopted 4 children from the foster care system. In fact, my newest son joined us just two weeks ago. I knew a long time ago that adoption was a path I wanted to follow. But, I also knew that foster care was not something I could do. The…
“CONCERNED CITIZENS” ATTEMPT TO BLOCK PROJECT THAT WOULD HELP PROVIDE QUALITY OF LIFE FOR HANDICAPPED CHILD
I’ll admit, when I first read this I thought of the huge ham radio tower my Dad put up on his 5 acres of land. But then as you continue reading you discover that this is simply a small pole, that isn’t going to be blocking anyone’s view and will be on private property. Whoa….
Ready to Fight
I was informed last week that my son’s Insurance authorized his Speech Therapy. Good. But they decided to cut his current sessions in half. Bad. ROAR!! Several people tried to convince me that this was actually a good thing. They were happy that he was given “twice the amount than they usually approve,” so to…
21.3.10 Project
SEW will be back next week. There a beautiful little girl we all know and love in the hospital again. I know your prayers would be very appreciated! Written by Lucille from Poppies Blooming Every year on the 21st of March something wonderful occurs! The entire world comes together to celebrate World Down Syndrome Day!…
Getting Personal
One of the more frightening aspects for me of having a child with significant disabilities has been the hiring of personal care aides. I’m so very grateful that Ashley has aides, but finding and retaining really good people is daunting, to say the least. Personal care aides assist a person with a disability with many…
Speaking Their Mind
My children love teeshirts, especially teeshirts that make a statement, even more especially teeshirts that make a statement about disability issues. So, in searching for some Christmas gifts, I found some shirts I especially liked at CafePress. So if you have ‘mouthy’ children like mine and are in need of some Christmas ideas, here are…
Not Her Failure
I ran into a girl, actually now a young woman, whose path I have crossed many times through the years. Each time I see her, I leave with a heavier heart. While many people who meet her now would label her a failure, I believe the failure is not hers. Here is a post I…
Making My Commitment
I was just reading a post over at Elizabeth Potts Weinstein. She shared a story about how after having completed a vacation tour of some park caves she came across a sign that read: SERIOUS DANGER. DO NOT PASS THIS POINT. Do not pass this point without a permit. Do not pass this point without…
Worth Every Challenge
I just posted this on my personal blog, and normally would not duplicate it here. But since this is National Adoption Month, and since adoption is the thing that has made my life complete, I feel compelled to continue spreading the word. Hope you don’t mind… From a very young age, I always wanted to…