Category Archives: Conditions and Diseases

This Everyday Love

Every night it’s the same thing. At bedtime, I climb into my four year old son’s bed next to him, cover him with all his blankets, and have this conversation: Me: “Thanks for a great day today!” My son: “Thank you.” Me: “What was your favorite thing you did today?” My son: “My favorite part…

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Pssssssst. Hello?

Is this thing on? This is my first post for 5 Minutes for Special Needs. I figure before I get into the nitty gritty posts, I’d introduce myself and my family. My name is Cheryl. I have a husband- Adam- who I’ve been with for 10 years and married for 5 years. We have 2…

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Time Discovers Truth

Before I became a mom, I did everything at high speed. My long legs galloped through airports, trade shows, malls, corporate hallways- purposefully propelling toward my destination. I assessed people too quickly, rushed through conversations, and often missed the simple beauty of everyday life. Fast forward years later, when my second daughter Zoe was 5-…

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To Write Love on Her Arms Day

According to the World Health Organization, depression is one of the leading causes of disability, with approximately 121 million people suffering with depression worldwide. The National Institute of Mental Health states that approximately 18 million people suffer from depression in America alone. Depression does not discriminate across age, race, gender, or class. Among teenagers it…

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You Don’t Need to Feel Sorry For Us

One things that saddens me about having kids with special needs is when folks tell you that they are “sorry” your children are disabled. I don’t mean to be ungrateful! I appreciate their concern, I really do. It’s just that I don’t consider my children a burden (Sure, they are HEAVY. They ARE finally gaining…

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Bedtime And Goals

Hi, my name is Kevin and I’m new here. It looks like I’m currently the only father blogger here so you might find some different ideas coming from me. My oldest daughter has Cerebral Palsy. It would be considered minor to moderate. She currently walks with braces and she had an SDR selective dorsal rhizotomy…

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Life as we know it

(reposted from the HennHouse) We’ve traded late night, happy hour dates for early morning mini conferences on raising spiritually healthy special needs kids. And we wouldn’t change a thing… We’ve traded Big Ten athletic events for seventh grade basketball tryouts. And we wouldn’t change a thing… We’ve traded philosophical discussions about politics and superpowers for…

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‘Tis the Season!

Here it is again! It’s November! Time to pack up all the summer clothes, the picnic blankets, and turn the clocks back. I don’t know about you, but I often lament this time of year for one other BIG reason: hibernation. My little dude has junky lungs. His immune system is just not up to…

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Special Exposure Wednesday.

Apologies for last week. This was us: Earning us three days in the hospital but this was taken yesterday: I’d say she’s doing much better. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also posting at Three Ring Circus.

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pills make the day go round

We tried 18 mg of Concerta (Methylphenidate). Then we upped it to 27 mg. After little success, we hesitantly moved up to 36 mg. We were surprised when it didn’t work very well. It has helped her sister immensely. That’s probably where we thought wrong. Since when are siblings ever on the same page on…

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