A couple of weeks ago, I wrote about Max’s habit of drooling. Last week, my husband took him for a checkup to the pediatric physiatrist. They got to talking about Max’s drooling, and the doctor prescribed a patch to help that we’d stick behind one of Max’s ears. Dave brought the prescription to our pharmacy….
Monthly Archives: February 2009
How Grief Has Changed Me
Written by Chrissi Grief has changed the person I am, the woman that I am and continue to be. It has changed the dynamics of my life and my family’s life forever. We have broken hearts, however – we have made an honest attempt of overcoming and persevering. How have I changed personally? I believe…
Fighting Cystic Fibrosis – An Interview With Courtnie
Courtnie describes herself as young, but her wisdom and strength say otherwise. Please join me in welcoming this incredible Mom and her lovely family! Tell me a little about yourself and your family. My name is Courtnie and I am a young stay at home mom. Dh and I have been married for just over…
CellKeeper Giveaway!
I’m one of those kind of people. The kind that puts their glasses down ‘just for a sec’ and then promptly forgets where she put them down at. Recently, while trying to multi-task by straightening up as I was getting ready to run a few errands, I threw away not only the stuff that needed…
Obtaining Speech Therapy for Young Children
When friends with young children ask how to get speech therapy for their child, I usually have to shrug in ignorance. I can tell them exactly what to do for a school aged child, but pre-Kindergarten? I’m at a loss. Last fall, however, I found this page on Speechville.com How to Find Help to Pay…
Compassion
Written by Natalie Let’s be honest, the journey through the more complicated side of neurofibromatosis with our daughter Mandy has not been easy. There have been many days of uncertainty, of fear, of desperation, of anger. We have tried to find the blessings whenever we can. One of those blessings is being able to see…
Transforming PT into Play Time…
The “to do” list during the day when you parent a child with medical challenges can be overwhelming. And long. Such a list can include everything from specialty feedings, to medications, to dressing changes, to management of medical equipment. And then of course there are all of those physical therapy and occupational therapy exercises that…
Looking for Girls on Craigs List
“Will you help me find me some nice friends?” pleaded Matthew last summer. In the past I’d advertised at a local college for friends for Matthew, but now that he was 22 and older than most college kids, I needed to look elsewhere and decided to try Craig’s List. “Seeking a mentor, friend type for…
In A Heartbeat.
I don’t know alot about heart abnormalities, really. I only know that aortic valve stenosis was one of the reasons my son died. I know that AS comes as mild, moderate, severe and critical and that Will’s was critical. I know that AS means that a usually tricuspid valve can be bicuspid and that the three leaves…
A Dad’s Eye View
The idea of this weekly post is to try and answer questions from a Dad’s perspective. It’s early days yet, so I have no real idea how this is going to work, so feedback – both positive and, er, tactful – is welcome. To get the ball rolling, when I suggested the idea last week,…