Category Archives: Conditions and Diseases

Let Organization Work for You and Your Child

Jennifer Donovan is here to share about a home organizational system aimed to help kids become more independent and self-reliant. This is a sponsored post, but her opinions are her own. I’ve outlined some of the features about the M.O.M. Method that I love, over in my post at 5 Minutes for Mom about how…

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Now She Knows She’s Different

When Zoe was little I spent a lot of time thinking  ( and writing) about about how different she was. Then she grew, and through her grade school years blossomed with the encouragement to try and do her best as I made sure she was always included, and treated just like everyone else. Zoe will be starting…

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Christmas Wonder for My Kids with Down Syndrome

This year, like the past seven, we’d been telling my live-in-the-moment Boys (identical twins with Down syndrome) for weeks that Santa Claus would soon be paying us a visit and leaving toys under Christmas trees all around the world for good little girls and boys in honor of Jesus’ birthday. “Why?” Because Jesus is all…

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Attitude Adjustment

Happy November, Friends! (How did this happen? Wasn’t it just January?) The past few months have been sort of rough for us. For some reason, it seems like everything we’ve done, or tried to do, went horribly wrong. When things don’t go the way I envision them, I tend to get–shall we say–moody? Maybe not…

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How to Hold it Together When the World Falls Apart

Hi you guys! This is basically my week again…only different surgery on the stomach…I’ll update you later…   ****************************************************************************     I get tired–the kind of tired that makes your bones ache. Sometimes, I get grumpy too. Hey, don’t we all? In this ever-winding road of special needs parenting, I find myself often in a…

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Antibiotics: How Do YOU Roll?

Need a little help here, PLEASE: My Big Little Man (who is smaller by 5 lbs now than My Little Man) got that back-to-school cold going around. For us, that means an imminent sinus infection as his compressed sinus cavities — a trait common to those with Down syndrome — makes him prone to this…

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Testing….

Hi there! Remember me? (don’t answer that…I’m beginning to feel a foreigner in my own land!)   So, here’s the current score. School District: 5, Jack: 3. It’s looking rough out there. His IEP was completed a few weeks ago. Because he turned 6, he has to be “transitioned” from the developmental delay label to…

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Being the Parent

I sat in the developmental psychologist’s waiting room just simply observing the behavior of the parents. Some were busy filling out paperwork, one was reading a book, another was totally in to playing Angry Birds. Not a single one was watching their child. I watched these children, who were obviously there for a reason, as…

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Hospital Homebound

School. It’s happening around here. Some of the counties near where we live have already returned to recess, brown bag lunch, and smiling teachers. We…start Monday. Well, my daughter starts Monday. My friend’s children start Monday. Jack. Not so much. See, we qualified for Hospital Homebound (HH). Basically, this is a school within a school….

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Always Sad to Say Goodbye

The child reminded me of a poignant moment from her babyhood the other day. She was maybe three years old at the time, and still very much a baby with her speech  and social delays. I was with her at our church for some reason – going to a meeting or something and she was…

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