The Winner of our Zebra Mix Giveaway is: #79 Janet F! Janet, you are going to absolutely LOVE these.
Monthly Archives: March 2009
Heartprints
We stood at the kitchen island. She was in the learning tower, “mixing.” I was next to her. I think I was making a pie. We worked silently for a while, with breaks for instruction or laughter. I’m pretty sure we both had our hair pulled back. It was Saturday. I looked over at my…
Planning a Camping Trip With Reflux, a G-Tube and Cyclic Vomiting Syndrome…
Why, you ask? Because I woke up one morning and said to myself, “Self — Your life is disturbingly deficient in chaos at the moment… I know! Let’s plan a summer camping trip! You know — hours upon hours of gluten-free menu planning, tube-feeds without running water, barf bags, taking that ten-mile drive back into…
A Rain Man Moment
The movie RAIN MAN was released the same week that my husband and I took our three-year-old son Matthew for an evaluation with a child psychologist. He’d stopped talking and was obsessed with lights and wheels, and we were trying to figure out what it was and what we should do. The child psychologist mentioned…
On waiting…
Ivy’s sleep study went okay. She was wired up and sent off to sleep, monitored by the machines and recorded on the camera. At 5:30 am we were woken by an abrupt nurse with a stern face. Vague questions about typical sleep patterns and snoring ensued as she pulled the wires from her skin. No,…
The Book Of Rare Diseases
Carrie will be a regular contributor here at 5MFSN. Look for her future posts on Sundays. There are hundreds of books that guide you on how to be a good parent. Each book has a different spin on our job, but the majority of them assume a certain path of development for our child. So…
A Profound Truth
My friend Lynnette sent me something last week that she found on the Internet. I’m on the Internet A LOT but had not seen this particular story. I liked it so much that I have decided to share it here also. Enjoy, and always remember to not listen to those that would try to hold…
The Head Banging. It Is Intense.
In the last six months Parker has gone from a quiet, sedate kid, to an independent, knows exactly what he wants kind of dude. I like a man who knows what he wants. But not so much a kid who bangs his head against the nearest, hardest thing to get it. Although, now that I…
Special Exposure Wednesday.
Ivy is wired for sound! Being wired up for a sleep study last night. Oh the things we do! Got something to share this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
Living With Cerebral Palsy Doesn’t Mean He Isn’t All Boy
It was an ordinary afternoon…sun shining, me doing laundry created by dirty boys…the boys outside playing and creating more dirty laundry…when I looked out the window onto our front lawn and saw the boys playing fetch with Ursula, our dog. Because you know, what is the point of enduring the pain and rehab of multiple…