When does the risk outweigh the benefit? How do you decide if medical treatments for your child are more harm than good? Making the tough calls has never been easy, and apparently the weight of this burden never goes away. I remember my son, 4 months old, critcially ill and crying incessantly. Crying because he…
Monthly Archives: August 2010
Advocacy for Special Needs
Sometimes, I have completely random thoughts that I just have to get out of my brain before it explodes. Lucky you–heh. We (as in special needs parents) advocate. Hard. Passionately. We push administrator’s buttons in the schools. We give the stink eye to people who stare at our kids. We complain (sometimes incessantly) about doctors,…
NEWS FLASH: Raising a child with special needs causes marital strain
According to a study by researchers from the University of Wisconsin-Madison’s Waisman Center, parents of grown children with autism are more likely to divorce than couples with typically developing children, according to new data from a large longitudinal study of families of adolescents and adults with autism. Uh, oh. The study, published in the August…
The Best Job in the World
This is the 9th day of a very difficult hospitalization and surgery for my newest son, Ronnie. I have been spending every waking moment at the hospital, and fortunately, the end is in sight. I believe Ronnie may be able to come home tomorrow. I hope you don’t mind that I pulled a post out…
A Very Special T-Shirt
Have I mentioned before that T-shirts talk to me? Well, one T-shirt does. It’s a shame really because other than this little quirk, I’m a mostly normal person. So the talking T-shirt? It belongs to Charlie (of course)My brother gave it to him years ago and it’s fro a company called Threadless. The T-shirt features…
Oopsie! Forgot to have a life
Last night, at 10:10 p.m., I stood in front of my bathroom mirror and plucked my brows. There were a lot of scraggly hairs, as I haven’t gotten around to doing this for a while, and I found it kind of zen to tweeze away. But as I stood there peering at my reflection, it…
Out Sick
Just wanted to make a quick post to account for my absence this week! Mama is sick. Traveling from Texas to Ohio and back again in three days has wreaked havoc on my allergies, leaving me with a sinus cold 🙁 . I’m on the mend though and will back in full force soon! Y’all…