Creating my own support system

Hannah will be 8 months old soon, and we have been dealing with her medical issues since her second day of life. She was about 2 months old once we started dealing with specialists who tested her for everything under the son.  However, it wasn’t until we met with her first genetics doctor that we realized…

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Caleigh’s Corner – An Interview With Holly

I believe as parents of children with severe disabilties, we have all at one time or another beeen completely devastated and overwhelmed. But, it’s at those times we find the real strength we have inside. That is exactly what Holly and her husband, Eric did, and through their example, we can all become a little…

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3.21.09 Celebrate Down Syndrome And Help Bring Kellsey Home

Around the world today people who love a child with Down syndrome are celebrating the beauty found within an extra chromosome. http://momseatofpants.blogspot.com 50 years ago most parents of a child with Down syndrome were told to hand their newborn off to an institution, because these children weren’t able to learn and would be nothing but…

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Hazelnut Kids Stockmar Block Beeswax Crayon Giveaway!

Hazlenut Kids is an online toy store that has provided me hours of recreational dreaming. Many a visit has been spent drooling over the natural, earth-friendly, wooden and organic toys for children and babies. Cause as any parent of a child with special needs will know, a toy is just a toy…..it’s therapy. In this…

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Good Questions

“What would happen to Matthew if you guys were killed in a plane crash?” asked a nervy acquaintance. The question stunned me. Since my son, Matthew was first diagnosed with autism as a toddler, I’d been asked tough questions about his future. “Will he ever live on his own and hold down a job? Do you…

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Eardrop Loathing.

Every few weeks it’s the same. Ivy gets an ear infection and her ears start to discharge. One of the joys of being immune deficient, I guess. Her ear goop grows all sorts of weird and wonderful things, ranging form your stock standard Staph all the way to various spores and fungii. When your body…

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Making a Difference

Have you experienced problems with a business or company that discourages shoppers with disabilities? Have you felt unwelcome when walking through the door of a store where the associates look down on you or your child with a disability? Would you like to take a vacation but have found it tough to travel with your…

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World Down Syndrome Day

March 21st is World Down Syndrome Day. On March 21st, 2009, World Down Syndrome Day will mark the 50th anniversary of the publication of Professor Jerome Lejeune’s discovery of the extra copy of chromosome 21 which causes Down Syndrome. 3 copies of the 21st chromosome. T21. Get it? Down Syndrome organizations around the world this…

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Special Exposure Wednesday

  Celebrating St Patricks Day in true Ivy style. Laying in the grass, watching the world go by. Got a beautiful moment to share? Why don’t you join in the fun here at Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus  

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Can’t Beat the Leprechauns, Join Them

Since my sons were preschool-age leprechauns have made a yearly romp through our home. Every St. Patrick’s Day morning the boys awaken to overturned furniture, strewn toys, hidden mint candies, shamrock confetti tossed about and green pee in the toilets…complete with wee green footprints on the toilet seats…evidence of the leprechaun’s play time. Until last…

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