I’m one of those kind of people. The kind that puts their glasses down ‘just for a sec’ and then promptly forgets where she put them down at. Recently, while trying to multi-task by straightening up as I was getting ready to run a few errands, I threw away not only the stuff that needed…
Obtaining Speech Therapy for Young Children
When friends with young children ask how to get speech therapy for their child, I usually have to shrug in ignorance. I can tell them exactly what to do for a school aged child, but pre-Kindergarten? I’m at a loss. Last fall, however, I found this page on Speechville.com How to Find Help to Pay…
Compassion
Written by Natalie Let’s be honest, the journey through the more complicated side of neurofibromatosis with our daughter Mandy has not been easy. There have been many days of uncertainty, of fear, of desperation, of anger. We have tried to find the blessings whenever we can. One of those blessings is being able to see…
Transforming PT into Play Time…
The “to do” list during the day when you parent a child with medical challenges can be overwhelming. And long. Such a list can include everything from specialty feedings, to medications, to dressing changes, to management of medical equipment. And then of course there are all of those physical therapy and occupational therapy exercises that…
Looking for Girls on Craigs List
“Will you help me find me some nice friends?” pleaded Matthew last summer. In the past I’d advertised at a local college for friends for Matthew, but now that he was 22 and older than most college kids, I needed to look elsewhere and decided to try Craig’s List. “Seeking a mentor, friend type for…
In A Heartbeat.
I don’t know alot about heart abnormalities, really. I only know that aortic valve stenosis was one of the reasons my son died. I know that AS comes as mild, moderate, severe and critical and that Will’s was critical. I know that AS means that a usually tricuspid valve can be bicuspid and that the three leaves…
A Dad’s Eye View
The idea of this weekly post is to try and answer questions from a Dad’s perspective. It’s early days yet, so I have no real idea how this is going to work, so feedback – both positive and, er, tactful – is welcome. To get the ball rolling, when I suggested the idea last week,…
Ashley and The Short Bus
A while back I was asked a question by a remarkable young man named Jonathan Mooney. The tag line on Jonathan’s website is “Author, Public Speaker, Different”. The publisher of his two books describes him on their web page: A young man, once called unteachable, journeys across America to investigate the lives of those, like…
No Umbilical Cord
A small square room with four chairs, a desk with a computer and office chair, one window with blinds, bookshelves, a couple of plants. One psychiatrist, one mom, one child. The things unseen are indescribable. Not one person in that room can feel the emotions of another, nor hear the thoughts of another. The time…
Special Exposure Wednesday
Do you think these…er…offerings that Ivy ‘baked’ are gluten and lactose free? She assures me they are. Got something playful to share? Join us here at Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus