We went to the birthday part of a friend’s kid this weekend. It was at a gym. Max had a great time at his sister Sabrina’s gym party, so I was hoping he’d like this, too. Only Max had his own ideas. He didn’t want to follow what all the other kids were doing. First,…
Fathers
Today’s post is an excerpt from my book that highlights the fact that I have the best father in the whole world. THE INTERVIEW Matthew fussed in his infant seat while I struggled to put myself together. In the eight weeks since his birth, I polled my friends who had gone back to work after…
I’m just like every other mom, right?
Last Sunday we had a rough experience, or at least *I* did. Whenever something like this happens it really highlights to me how different we are from other families. It seems like in between these moments (because there are lots of them) I tend to forget how different we are. Crazy me, I just go…
Beach Chickens
One of Ashley’s favorite things to do at the beach is to feed the seagulls. I’ve taught all my children from a very young age how to throw food to one seagull, and almost instantly 20 more will appear. We’ve fed them from hotel balconies – we’ve fed them while we were on the beach…
Special Exposure Wednesday.
She spends so much time in the hospital or at appointments. Alot of time on her own, without Noah or the others. Days, weeks, when she has to miss out on the things that her friends do. Her teachers tell me she is socially withdrawn and has a hard time mixing with her peers and…
Whoa! Even More Special Needs Mommy Confessions
You know, just in case you hadn’t gotten enough confessions the last time. • I’ll let Max get away with stuff—like having three chocolate ice-creams in a row—because I feel sorry for him. As if having all that ice-cream will somehow make up for the fact that he has cerebral palsy. • I’d like to program…
Teachers
This is the time of year that many of us stress out about teachers gifts. Guess what? What your child’s teacher would like the most (they might not even realize it until you give it to them) is a heart-felt thank you note, written the old fashioned way (on note paper-not in email form) along…
Any words of wisdom for the IEP?
I thought I had a fairly good grasp of what type of school and support he needed fir the IEP. But where I find myself lacking is what kind of supports the school can and will offer for a medically fragile child.
I’m quickly finding out they don’t “offer” much. It seems I need to ask for every possible thing under the sun and then somehow prove why he needs what I am asking for. Has anyone else had that experience?
Definitely NOT a Poor Thing
Why do most people say “awww, poor thing” when I tell them of Ashley’s significant disabilities? I admit that when I list all her issues, it might seem like she has a daunting job just existing each day. But I honestly don’t believe, and I think Ashley would agree with this assessment, that her life…
Special Exposure Wednesday.
She often keeps vigil with the small sausage dog on days when she’s too sick or too tired for preschool or ballet. He is the great company keeper. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also posting at Three Ring Circus.