I first read the article I’m about to share with you a few days ago. I hesitated for a moment to share it due to it’s obvious religious overtones. But the story is true. The author is sharing memories of his daughter through the eyes of his experiences and daily life. His life just happens…
Tag Archive: special needs
A New Website Helps Parents Navigate Medical Research Trials
I’m the Mom of a kid with special needs. Parker was born with an extra chromosome. It’s known in layman’s terms as Down syndrome. But Reed and I refer to that extra chromosome as ‘no big deal.’ Honestly and truthfully. Especially compared to Parker’s diagnosis of Pulmonary Hypertension. Parker can live a long and joyful…
A Different Kind Of Love Story
I’m kicking back tonight. Just me and my laptop. And a large Dr. Pepper over ice. But let’s just keep that last part between me and you, k? Trust me when I say the size of this Dr. Pepper is not Weight Watcher friendly. I’ll put in extra laps tomorrow. Maybe. I can hear Reed…
Talking About Your Child’s Special Needs
Based on this post, many of you asked my thoughts on specific issues. Last week I began writing about the requested topics. Talking to people about your child’s special needs can be difficult. You should always remember that who you talk to and what you say is always your choice. Also remember, talking about it…
Our Village
Today we are up at our local Children’s Hospital. More testing. The story of our lives. Parker has a major surgery coming up in November and we need to get some problems figured out before we hook everything back up. Yeah, we’re a bit worried about today’s procedure. Parker has a history of giving his…
Where Is That Invisibility Cloak?
Based on my post of last week, many of you asked my thoughts on dealing with behavior issues, meltdowns in the public eye and when and how to inform other people of your child’s “invisible” special needs. Today I begin writing about those and other topics requested. Comments remain open on that post, and I…
OMAC My Favorite Sanity Saver
It doesn’t seem to matter how much time I may have spent homeschooling, therapy-ing, and being the Mommy, my family still always expects dinner. Even if they just had it, you know, last night. Who came up with the bright idea to eat dinner every night, anyway? Because about the last thing I want to…
People, Talk to Me
We are a homeschool family, and no matter how engaging I may be, sometimes I lose the boys’ attention. When it happens, I ask them… “What would you like to learn about today?” “What questions would you like answered?” I know. You’re calling me brave or utterly foolish, but it never fails that I am…
Rub-A-Dub-Dub…. There Went My Time In The Tub
Once there was a time when I spelled luxury : g-a-r-d-e-n t-u-b. Add a few candles, lots of bubbles, a good book, a bar of homemade soap from my own private recipe, and life was good. When the hot water cooled, I would drain it off, refill the tub, and repeat as often as I…
This Just In: A New Team Member
Anissa, from hope4peyton, will be joining our 5MFSN in this time spot. Yeah. How lucky are we? Smart. Funny. And an advocate that isn’t afraid to go all MOTHER OF THE BEAST when necessary. But, you know. In a good way. Anissa blogs at Peyton’s Hope Page where she encourages us to Live, Laugh, Live,…