Hospital Survival Tips — 5 Minutes for Special Needs — Page 2

Hospital Survival Tips

Hospital day four…

Yesterday was a pretty big day.

In more ways than one.

The good doctor decided to push Ivy’s Vancomycin up to a full dose.

By the completion of that dose my girl was puffy and bright red and she had a rash all over her trunk, arms and the tops of her legs. Her heart rate sky rocketed and she was generally cranky and out of sorts for the rest of the day. By night fall she was exhausted.

Apparently she had a reaction to the antibiotic, known as Red Man Syndrome.

They slowed it down and it’s all good now.

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The Doctor Will See You Now

We live in a city that has many very good hospitals. One of those hospitals is a teaching hospital. It’s an inner city hospital which means should you have to visit the emergency room, you may find yourself sitting next to someone who has been shot or stabbed, and you will most assuredly hear very colorful language floating through the waiting room.

One statement I have heard many times is that if someone is hurt very badly or is really ill, this particular hospital is the place to go. I agree with that assessment. But being in this hospital does present at least one challenge.

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Preparing For A Medical Emergency With A Medically Fragile Child…


A very wise NICU nurse once told me, “Sometimes the difference between life and death is in being prepared.” I took those words to heart and they saved my daughters life. More than once.

When you have a medically fragile child, it can feel like you barely have time to catch your breath before the next giant wave snatches it away. You feel like you’re too busy dog-paddling to even think about developing any sort of plan for facing an emergency, but I’m here to tell you that in spite of what you feel, you can plan ahead. Your child’s life may very well depend on it.

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The light at the end of the tunnel keeps getting brighter, yo!

Most people want to start the year with resolutions about losing weight, calling their mother more frequently or keeping their house cleaner.


Our resolution is this: Only one hospital stay this year.

Can I get an AMEN?!

Because we’re already scheduled for it and if all goes well it makes all further hospital visits a non-issue.

Peyton’s scheduled to have her port removed on Friday. No more port means no more fever induced hospital stays to check for infection, no more three day stays for no good reason.  OH, the crazy relief!

They’re going to put her under anesthesia, they are going to cut into her skin, they are going to dig out a piece of equipment that’s helped her get through treatment for two and half years.

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