Humble apologies for no post last week, we were, unfortunately, back in the hospital with the girl and after becoming septic for the second time in a month, the port was removed and a PICC line placed. On the 19th, it will be a reversal, where the PICC will be removed and a new port…
Tag Archive: immune deficiency
Special Exposure Wednesday.
When you have a PICC line that is connected to IV antibiotics 24 hours a day you need a bag. When you have to wear a bag all day and all night and you are three and a half, it is essential that it be a) fashionable b) washable c) big enough because when…
Special Exposure Wednesday.
When you are the mother of an immune deficient child, you often wonder; Who is the mask protecting? At least her eyes are smiling. Got a photo to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus…
On Ports
Ivy has been on a downhill slide for the last ten days. Up down, up down. Sick, okay, just hanging in there. Each day has been an adventure. After the PICC came out, her ears started discharging almost immediately and the paed was getting all his eggs together, planning his next move. We were trying…
Micromanage or bust
For the last week I’ve been giving Ivy her intra venous antibiotics. One is a slow push and the other is a pump that infuses the medication over 24 hours. I clean the area and flush the line. It’s been great at home. I set it all up. Ivy knows the order they go in and…
Special Exposure Wednesday.
Gran saves the day, making glove animals, while Ivy waited 22 hours, nil by mouth, for her PICC line. Thank goodness for Grans! Got an amazing moment to share? Why don’t you join us at Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three…
Hospital day four…
Yesterday was a pretty big day. In more ways than one. The good doctor decided to push Ivy’s Vancomycin up to a full dose. By the completion of that dose my girl was puffy and bright red and she had a rash all over her trunk, arms and the tops of her legs. Her heart…
One day at a time.
One day, Ivy might be well. One day I might feel as though I am doing something right for her. One day she might forgive me for having to put ear drops in, for giving medications she hates the taste of, for introducing her to yet another doctor and another intravenous antibiotic. One day I might…
Special Exposure Wednesday.
A small sausage dog definitely helps when you are feeling under the weather… “Chippy” and Ivy share a quiet moment. Got something sweet to share? Join us at Special Exposure Wednesday. We’d love to see your photos! Please remember your comment love at each link you visit. Also blogging at Three Ring Circus…
The trickle down effect.
Ivy was denied the three weekly Intragam and so her meltdown week continues. I’m disappointed. Mostly for Ivy because she feels awful for over a week before her next infusion and she just doesn’t know why. Mostly for Ivy because for that week before she has her next IVIG she starts to pick up all…