Getting by with a little help from my friends

Tuesday was a good news day…a LONG one, but a good day over all.

Wednesday, however, turned into bad news central. One issue followed by another, and by Noon I was ready to declare myself “DONE!”

But I don’t get that luxury.

I cannot be DONE when they Pharmacy calls to tell me the ONE med that helps my son breath every other month is no longer being manufactured two hours after the doctor’s office closed.

I cannot be DONE when the Insurance Case Manager calls to let me know that the $6K hearing aid we have requested for the 2nd time already got approved, LAST AUGUST!

I cannot be DONE when she declares that she will not reprint the Authorization for the vendor because they have a “new system” and we are out of luck.

I cannot be DONE when I have a years worth of paperwork to wade through to find one with some matching numbers.

I cannot be DONE when I find the paper, but find that it doesn’t say what she thinks it says. No codes.

I cannot be DONE when the Vendor insists I fax the paperwork over so he can see the codes. I hope he can read invisible ink!

I cannot be DONE when he gives me the wrong fax number and then sends their messages to voicemail while they go to lunch.

I cannot be DONE when I try to fax it from home only to realize that our home phone no longer dials long distance.

I cannot be DONE when the nurse who has been on vacation for the last 10 days and is supposed to be back tonight sends me a text that she will, in fact, NOT be back today.

I cannot be DONE when the Nursing Agency doesn’t call to inform me about this scheduling snafu or find a replacement.

I cannot be DONE when I have a sensory integration specialist coming to observe this afternoon’s PT appointment which happens to coincide with our AM Nurse’s shift end.

So to combat my “I’m So Done Blues” I posted this message on Facebook:

I have declared this “No More Bad News Day” no one is allowed to call, text, email, tweet or FB me ANY more bad news. That is all.

Pretty quickly my friends chimed and posted their Good News. I love my friends.

Let’s face it, a Mother’s work is never DONE. There will always be laundry, dishes and last minute book reports that need to be done. Or in my case, there will more than likely always be pharmacies to call, doctors to email and insurance folks to fight with.

That’s called life.

Janis chronicles her son’s medical journey at Sneak Peek At Me. She is an advocate for medically fragile children and families living with a rare disease diagnosis.

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