I love finding new blogging Moms, and Laura is one of the best. Join me in finding out more about this amazing mom and her extremely handsome son, and then don’t forget to visit her blog, My New Blog Journey.
Tell me a little about yourself and your family. You may include you name if you wish, and where you live.
I am Laura, my son is Aaron, 9. We live together in adapted housing.
Tell me more about your son’s disabilities. Did you know when he was born that he had disabilities? If not, how did you feel when you discovered it?
Aaron was born at 34 weeks gestation with Peirre Robin Sequence, which involved a small receding chin and horse-shoe cleft of the soft palate and severe Congenital Scoliosis which involved pulmonary insufficiency. As an infant he was constantly ill with pneumonia. He was also poor feeder and at 9 months old he was placed a gtube which he still uses to this day. He sleeps with BiPap to aid in respiration since 14 months old. At 3.5 years old it became apparent that his scoliosis needed to be addressed. During surgery a complication arose and he became paralyzed from the waist down. We now have do deal with neurogenic bowel and bladder. He’s also global developmentally delayed and on the Autism spectrum.
You blog a lot about your son’s issues, and that is so valuable to me and I’m sure, to others that read your blog. How did you go about making the decision to blog about him? What do you personally get out of blogging about him and their issues?
Blogging became my outlet for reaching out and finding like-minded folks out there. The isolation alone is enough to make one go insane. I wanted to share our story honestly. This is who I am, this is where I’ve come from, this is what I deal with.
How have your son’s disabilities affected you as a person and as a mother?
I wouldn’t be who I am if I had not had my son. My level of patience has grown by leaps and bounds, on most days. I try to live for today, I try to capture as much joy as I can in each day. I cuddle him like there’s no tomorrow.
What did you do right? What do you wish you had done differently?
I don’t know how to answer this. The one thing I struggle with most and beat myself up the most about regarding his tube feedings. That’s a long and complicated history and some days I blame myself for it and other days there is nothing and no one to blame, it just happened this way.
What do you want other parents to know?
If the question means what do you want other parents living this same reality to know then I’d reply just do everything you can with love. And face all fears head on!
Is there anything else you would like to share?
That it’s most important to find time for yourself. As well as find a great support system!
Deborah can be found writing here at 5MFSN every Sunday and Wednesday, and can also be found at Pipecleaner Dreams.