Just seven more days to get your entries in for a chance at a BidetSpa!! Just recently I had one of the bathrooms in our home remodeled to be accessible for my daughter, Ashley. Ashley is 13 years old, deafblind and has had two brain tumors removed in the past, and currently has three more…
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Author Archives: Deborah
In addition to her job as a computer engineer and her single parent responsibilities, Deborah is president of a state-wide family support group for families whose lives are touched by deafblindness, and is a tireless advocate for all people with disabilities. She writes at Pipe Cleaner Dreams and her writing has also been featured in local magazines and newspapers. Ashley’s story has also been chronicled in a book by Jonathan Mooney titled Short Bus Stories.
What Do YOU Expect?
Written on September 17, 2008 by Deborah
Compliance – no, not the legal kind – the kind that is expected of our children with disabilities. I feel that the level of compliance expected in our school systems for our children with disabilities goes well beyond what is expected of non-disabled students. One of my children is in gifted educational programs. He is…
Jolly Holly and the New Su Review
Written on September 14, 2008 by Deborah
Su and my daughter, Ashley, have several things in common – dark, curly hair – a seizure disorder – and Moms who think the sun rises in their eyes! I’m sure you will enjoy meeting Holly and her beautiful daughter as much as I have. Tell me a little about yourself and your family. Hi,…
in Family Life
It’s Time For A Contest!
Written on September 13, 2008 by Deborah
Just recently I had one of the bathrooms in our home remodeled to be accessible for my daughter, Ashley. Ashley is 13 years old, deafblind and has had two brain tumors removed in the past, and currently has three more that her doctors are closely watching. All of that sounds rather daunting, but she lets…
Why Not Ask?
Written on September 10, 2008 by Deborah
In my 47th ranked state (in services provided to people with disabilities), it seems that most children and adults with developmental disabilities love going bowling and to the mall. The love of those two places starts early – grade school ‘community based instruction’ almost always involves a trip to either a bowling alley or a…
A Family Built By Birth and Adoption
Written on September 7, 2008 by Deborah
The Internet makes the world seem small sometimes. As I visited blogs of 5MFSN commenters, I discovered a blog titled “Cornish Adoption Journey.” While exploring the blog, I discovered that the Cornish family lives in the same city as my former in-laws. I also spent a year living with my in-laws, and attended the same…
Expecting Too Much?
Written on September 3, 2008 by Deborah
Unfortunately the conversation related below actually took place. And even though it was five years ago, it probably won’t surprise some parents that not much has changed. I am so very tired of all the school battles, yet this school year is starting off that way yet again. Maybe that is the school district’s strategy…
Really Sherific!
Written on August 31, 2008 by Deborah
It’s really spooky. Sometimes when reading Sheri’s blog posts, I feel like she is inside my head and reading my thoughts. It is true that we both have adopted children who are diagnosed with FAS (Fetal Alcohol Syndrome), and perhaps that is the reason her words could be mine. This week’s interview is a bit…
Please Don’t Leave
Written on August 27, 2008 by Deborah
I’ve read posts by several bloggers recently on the subject of lost friends – people who leave your life once you have a child with disabilities. I’ve experienced that also, but it began before my dear Ashley ever joined my family. When I shared with my friends and family that I wanted to adopt a…
Analyze This – An Interview With PsychMamma
Written on August 24, 2008 by Deborah
The first thing that drew me to PsychMamma’s blog was the title! The second was her beautiful photography. I had to know more – and now you can also! Tell me a little about yourself and your family. My name is Dawn and I’m a SAHM and wife currently residing in the Midwest. Our daughter,…
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