In addition to her job as a computer engineer and her single parent responsibilities, Deborah is president of a state-wide family support group for families whose lives are touched by deafblindness, and is a tireless advocate for all people with disabilities. She writes at Pipe Cleaner Dreams and her writing has also been featured in local magazines and newspapers. Ashley’s story has also been chronicled in a book by Jonathan Mooney titled Short Bus Stories.
Written on
June 16, 2010 by
Deborah
One of Ashley’s favorite things to do at the beach is to feed the seagulls. I’ve taught all my children from a very young age how to throw food to one seagull, and almost instantly 20 more will appear. We’ve fed them from hotel balconies – we’ve fed them while we were on the beach…
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Why do most people say “awww, poor thing” when I tell them of Ashley’s significant disabilities? I admit that when I list all her issues, it might seem like she has a daunting job just existing each day. But I honestly don’t believe, and I think Ashley would agree with this assessment, that her life…
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I attended a baby shower this past weekend that was a bit unconventional. The mom-to-be is a woman who worked after school with my daughter, Ashley. She is also a high school special education teacher. Dad-to-be works at the same high school and assists students with special needs find supported employment. They seem to be…
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Ashley had a good day at school today UNTIL her vision teacher showed up just 15 minutes before the end of the school day. Ashley may not be able to tell you exactly what time it is, but she knows her daily schedule down to every last minute. School is over at 3:15 pm, and…
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Disciplining a teenager is difficult for me, especially when the teenager needs lots of discipline. I don’t believe in corporal punishment so hitting them is not an option (that and the fact that they are bigger than me). Confining me to my room was a technique used by my parents, but in this day of…
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My son needs a new wheelchair. The one he brought from his foster home feels like it is going to just collapse in a heap at any moment. The brakes constantly need adjusting – it shimmies and shakes – the arm pads are way too close to the wheels – and I worry about my…
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I read a post yesterday from one of my favorite bloggers, Jess at Connor’s Song. While the post was primarily about Jess’s nesting instincts and the new daughter she and her husband are adopting, she shared some of the comments people have made about that adoption. Those comments, most of them insensitive, really struck a…
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Written on
April 28, 2010 by
Deborah
As many of you know, I just adopted a 15 year old young man named Ronnie. Ronnie is deaf and has spina bifida. Since my youngest daughter is also deaf, making sure Ronnie has all the appropriate supports isn’t new to me. But the spina bifida is. I have a bunch of questions. For instance,…
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Written on
April 21, 2010 by
Deborah
Both Corey and Jessica have some strange obsessions with food, and I don’t know how to help them. I had hoped that enough time in a stable, loving home would let both of them know that food is something they don’t have to worry about. But still it seems that they do. Corey’s and Jessica’s…
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Written on
April 14, 2010 by
Deborah
Ashley was cast today. Not for a play or a movie, but for those plastic orthotic things you see on the feet and ankles of many kids with physical disabilities. This was the third attempt at casting and finally, success was achieved. The casting process is almost exactly like getting a cast when an arm…
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