A personal message from John C. McGinley, actor and father of Max, who lives with Down Syndrome. Hi, I’m John C. McGinley. I’m an ambassador for the National Down Syndrome Society, and today I’m teaming up with Special Olympics to bring you a message that’s important to me. So many times in life you are…
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Author Archives: Melody
Spread the Word 03/31
Spread the word to end the word the R-word Pledge And Tuesday, March 31, 2009 if you have a blog please post Need more encouragement… listen to some of the special kids responsible for the movement. Not yet encouraged? More We will have a post up tomorrow. We hope you’ll come back and leave a…
What If We Had Listened to the Experts?
Written on March 24, 2009 by Melody
Sometimes I don’t know where to begin…or whether to begin at all. Ever been there? My brain freeze and total body paralysis occur when I begin to think about balancing the never-ending needs of four sons – three living with a variety of special needs which comprise a spectrum of behaviors and needs…mental as well…
Can’t Beat the Leprechauns, Join Them
Written on March 17, 2009 by Melody
Since my sons were preschool-age leprechauns have made a yearly romp through our home. Every St. Patrick’s Day morning the boys awaken to overturned furniture, strewn toys, hidden mint candies, shamrock confetti tossed about and green pee in the toilets…complete with wee green footprints on the toilet seats…evidence of the leprechaun’s play time. Until last…
Living With Cerebral Palsy Doesn’t Mean He Isn’t All Boy
Written on March 10, 2009 by Melody
It was an ordinary afternoon…sun shining, me doing laundry created by dirty boys…the boys outside playing and creating more dirty laundry…when I looked out the window onto our front lawn and saw the boys playing fetch with Ursula, our dog. Because you know, what is the point of enduring the pain and rehab of multiple…
The Problem Isn’t Really The Problem
Written on February 25, 2009 by Melody
Don’t get me wrong, Fetal Alcohol Syndrome presents itself in the form of many problems for my son and our family. But sometimes, well, sometimes the problem isn’t really the problem. We are a homeschool family and over the past year we have not seemed to accomplish much. It was decided that Lee was the…
No Umbilical Cord
Written on February 18, 2009 by Melody
A small square room with four chairs, a desk with a computer and office chair, one window with blinds, bookshelves, a couple of plants. One psychiatrist, one mom, one child. The things unseen are indescribable. Not one person in that room can feel the emotions of another, nor hear the thoughts of another. The time…
in Therapy
Right, Left, Does It Really Matter
Written on February 11, 2009 by Melody
Life events of recent months have caused me to think way too much about everything. So I’ve decided to quit…thinking so much, that is. Let’s face it. In the end does it really matter if the right boot was on the left foot or the left boot on the right foot…that we have this diagnosis…
Special Exposure Wednesday ~ One Little…
Written on November 26, 2008 by Melody
…Indian boy. This is a scanned image of a 35mm print taken November, 1999, of then four year old Lee at his preschool Thanksgiving feast. He made his vest and headband…which reads “Chief Running Fast”. Oh how appropriate is that you have no idea. HAPPY THANKSGIVING! Share a photo with us this Special Exposure Wednesday….
The Child Is A Miracle
Written on November 25, 2008 by Melody
The child must know that he is a miracle, that since the beginning of the world there hasn’t been, and until the end of the world there will not be, another child like him. ~~Pablo Casals This quote is the perfect expression of what has been on my mind…in my heart. My grandest desire is…
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