I first read the article I’m about to share with you a few days ago. I hesitated for a moment to share it due to it’s obvious religious overtones. But the story is true. The author is sharing memories of his daughter through the eyes of his experiences and daily life. His life just happens…
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I’m the Mom of a kid with special needs. Parker was born with an extra chromosome. It’s known in layman’s terms as Down syndrome. But Reed and I refer to that extra chromosome as ‘no big deal.’ Honestly and truthfully. Especially compared to Parker’s diagnosis of Pulmonary Hypertension. Parker can live a long and joyful…
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I’m kicking back tonight. Just me and my laptop. And a large Dr. Pepper over ice. But let’s just keep that last part between me and you, k? Trust me when I say the size of this Dr. Pepper is not Weight Watcher friendly. I’ll put in extra laps tomorrow. Maybe. I can hear Reed…
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Three Strange Words: Alpha-1 Antitrypsin Deficiency Hello! I’m your guest blogger, Jen, every Friday in the month of October. I’ll be writing about my special little girls, Grace and Meghan, who were both born premature and also have a genetic disorder. This is my introduction. In April 2002, our Gracie entered the world screaming as…
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Last week Reed and I took Parker to get his monthly blood draws. Two results that always cause us to hold our breaths are his BNP and his liver function panel. An upward trend in either spells trouble. The next night Parker’s cardiologist called to let me know that both values came back elevated. I…
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Okay. After of week of lacing up my Army boots and marching head first into the battle of getting Parker the proper vent for his needs, I’m ready to have a light hearted moment. Or several. How about if we create a list of how ‘You Know You Are A Parent Of A Kid With…
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Today we are up at our local Children’s Hospital. More testing. The story of our lives. Parker has a major surgery coming up in November and we need to get some problems figured out before we hook everything back up. Yeah, we’re a bit worried about today’s procedure. Parker has a history of giving his…
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It doesn’t seem to matter how much time I may have spent homeschooling, therapy-ing, and being the Mommy, my family still always expects dinner. Even if they just had it, you know, last night. Who came up with the bright idea to eat dinner every night, anyway? Because about the last thing I want to…
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Once there was a time when I spelled luxury : g-a-r-d-e-n t-u-b. Add a few candles, lots of bubbles, a good book, a bar of homemade soap from my own private recipe, and life was good. When the hot water cooled, I would drain it off, refill the tub, and repeat as often as I…
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Anissa, from hope4peyton, will be joining our 5MFSN in this time spot. Yeah. How lucky are we? Smart. Funny. And an advocate that isn’t afraid to go all MOTHER OF THE BEAST when necessary. But, you know. In a good way. Anissa blogs at Peyton’s Hope Page where she encourages us to Live, Laugh, Live,…
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