Author Archives: Tammy and Parker

I am the mother of 5 wonderful kids. My youngest, Parker, is a medically fragile blessing with Down's Syndrome. I am @ParkerMama on Twitter.

Winners!

Our Cell Keeper winner is: #26 Chris N. The winner of our first My Wonderful Walls contest is: #39 Rebecca from Living In Rainbow WorldNursery Murals Nursery Murals I’ll be contacting you soon!

Continue Reading »

A Rare Disease and Hannah’s Fight

February 28th is Rare Disease Day: http://www.rarediseaseday.org/ For many parents having a child receive a diagnosis can be heartbreaking. But add the words ‘rare’ and ‘fatal’ to that diagnosis and heartbreak turns into terror. Where do you find doctors to help in your child’s fight for life? Are there treatments? Are there others out there…

Continue Reading »

How Grief Has Changed Me

Written by Chrissi Grief has changed the person I am, the woman that I am and continue to be. It has changed the dynamics of my life and my family’s life forever. We have broken hearts, however – we have made an honest attempt of overcoming and persevering. How have I changed personally? I believe…

Continue Reading »

CellKeeper Giveaway!

I’m one of those kind of people. The kind that puts their glasses down ‘just for a sec’ and then promptly forgets where she put them down at. Recently, while trying to multi-task by straightening up as I was getting ready to run a few errands, I threw away not only the stuff that needed…

Continue Reading »

Compassion

Written by Natalie Let’s be honest, the journey through the more complicated side of neurofibromatosis with our daughter Mandy has not been easy. There have been many days of uncertainty, of fear, of desperation, of anger. We have tried to find the blessings whenever we can. One of those blessings is being able to see…

Continue Reading »

Grief and Siblings

Written by Chrissi When a child passes away, the pain for all is so hard to comprehend, especially for a sibling. We, as parents, have our own grief and our own pain and we tend to not be aware of what our children, the siblings may be feeling. I know for our family that was…

Continue Reading »

Spreading The Love With My Wonderful Walls.com

Some people just like to spread love. Stephanie and her husband from My Wonderful Walls are two of those people. Creating individual works of art with their Kids Murals and Nursery Murals, this husband and wife team are growing their new business by planting seeds of love. Stephanie was so sweet to send Parker a…

Continue Reading »

Grief and Marriage

Written by Chrissi The loss of a child DOES and can have an impact on marriage. As each parent tries to find some sense of comfort, some sense of balance after such a loss, it can lead to anger, anxiety and strain on a marriage. I believe this is because daddies and mommies grieve differently….

Continue Reading »

The Diagnosis

Written by Natalie: Every parent to a special needs child has that story. You know the one, the one we never wanted to have. The diagnosis story. As an introduction, I thought I would share ours. It was the first of many diagnosis stories to follow. So, how was my daughter Mandy diagnosed? The answer…

Continue Reading »

This, That and a Few Other Things

I don’t know about you, but the amount of recalls lately has me more than a little bit concerned. Uh, peanut butter anyone? If you scroll all the way down on this site you will see a list of current peanut butter recalls. The folks over at Parents.com must have been reading my mind. Their…

Continue Reading »