Author Archives: TiffandIvy

Bringing up seven kids has led to in depth knowledge of asthma, autism, fetal alcohol syndrome and drug induced developmental delay, immune deficiency and autoimmune disease, ectodermal dysplasia, neonatal death and cardiac defect. Despite all of that, I didn't know I was about to start the ride of my life with the illness of my youngest daughter, Ivy.

Special Exposure Wednesday.

    Ivy. Our everyday princess. Got a photo to share? Why don’t you join in this Special Exposure Wednesday.  Please remember your comment love at each link you visit. Also blogging at Three Ring Circus

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Special Exposure Wednesday.

  My new fave of  The Secret Seven. Got a favourite photo to share? Why don’t you join in this Special Exposure Wednesday.  Please remember your comment love at each link you visit. Also blogging at Three Ring Circus

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Special Exposure Wednesday

    Spring is here. There is nothing better than standing under an umbrella in a sun shower. It’s the simple pleasures. Got a photo to share? Why don’t you join in this Special Exposure Wednesday.  Please remember your comment love at each link you visit. Also blogging at Three Ring Circus

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Special Exposure Wednesday.

    Ivy thanks the nurses at the Infusion Lounge, after six weeks of looking after her PICC line is complete. Got a photo to share? Why don’t you join in this Special Exposure Wednesday.  Please remember your comment love at each link you visit. Also blogging at Three Ring Circus

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Special Exposure Wednesday.

    Amongst the constant movement of the Operating Theatre, Ivy and I are just waiting. Got something to share? Why don’t you join in this Special Exposure Wednesday.  Please remember your comment love at each link you visit. Also blogging at Three Ring Circus

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Special Exposure Wednesday.

  She takes it all in her stride. Ivy has her PICC line cleaned and the dressing changed for the last time. The port will go in on Thursday. Got a photo to share? Why don’t you join in this Special Exposure Wednesday.  Please remember your comment love at each link you visit. Also blogging…

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Her Own Way

Ivy is different. I know that. Dave sees it too. She doesn’t play like an almost four year old. She is wise beyond her years. On Monday, when she was being canulated for the IVIG, we happened upon a doctor who asked her lots of questions and spoke to her like she was, well, a four…

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Special Exposure Wednesday.

  Sometimes being chronically ill is a real balancing act. Got a photo to share? Why don’t you join in this Special Exposure Wednesday.  Please remember your comment love at each link you visit. Also blogging at Three Ring Circus  

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Mothers, don’t let you babies grow up to be doctors.

Every doctor has an opinion. A strong one. The cardiologist disagrees with the respiratory doctor. The pulmonologist can’t see why the endochrinologist is medicating with that medicine. The endo argues with the infectious diseases doctor who can’t see the ENT doctor’s point of view. The ENT doc’s ideas are different again from the immunologist’s and they…

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Special Exposure Wednesday

  For a boy who everyone thought would never be able to live a full and happy life, Mal is definitely the king of his castle! Exploring the surrounds of Sugarloaf Mountain, Rural NSW, Australia. Got something uplifting to share? Why don’t you join in this Special Exposure Wednesday.  Please remember your comment love at…

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