Author Archives: TiffandIvy

Bringing up seven kids has led to in depth knowledge of asthma, autism, fetal alcohol syndrome and drug induced developmental delay, immune deficiency and autoimmune disease, ectodermal dysplasia, neonatal death and cardiac defect. Despite all of that, I didn't know I was about to start the ride of my life with the illness of my youngest daughter, Ivy.

The weaning process.

I think that I am the president of the “I hate Prednisone” club. While this little corticosteroid has it’s place in the medical world and definitely (unfortunately) in the life of my almost four year old daughter, I still loathe it. Ivy has been on this medication now for about 18 months and it supresses her…

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Special Exposure Wednesday.

  When you have a PICC line that is connected to IV antibiotics 24 hours a day you need a bag. When you have to wear a bag all day and all night and you are three and a half, it is essential that it be a) fashionable b) washable c) big enough because when…

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The tale of two doctors.

Two weeks ago, one of the paediatric registrars asked if  we would be interested in taking part in the examination process for the doctors wanting to become paediatricians. I said yes. Ivy was the ‘patient’ for, what they call, the long case study. An hour long interview where the doctor extracts as much information and…

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How do you teach accountability?

A few weeks ago, we received a phone call from Mal’s teacher. He had been in a fight with another of his classmates and had found himself in deep trouble. Not only that but he had come up worse than the other kid in the fight and had been thumped across the head. By the…

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Special Exposure Wednesday.

    When you are the mother of an immune deficient child, you often wonder; Who is the mask protecting? At least her eyes are smiling. Got a photo to share? Why don’t you join in this Special Exposure Wednesday.  Please remember your comment love at each link you visit. Also blogging at Three Ring Circus…

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Invisible Wings

The nurses on our ward are angels with invisible wings. They are almost like a second family to Ivy and I. I can even tell some of them how much of a failure I feel. How my mothering takes a severe beating when I have to bring Ivy to the hospital, tail between my legs,…

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Special Exposure Wednesday.

    He looks how I feel. We are still in the hospital and Ivy and I are missing our family. Badly. Got something emotional to share? Why don’t you join in this Special Exposure Wednesday.  Please remember your comment love at each link you visit. Also blogging at Three Ring Circus ;  

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On Ports

Ivy has been on a downhill slide for the last ten days. Up down, up down. Sick, okay, just hanging in there. Each day has been an adventure. After the PICC came out, her ears started discharging almost immediately and the paed was getting all his eggs together, planning his next move. We were trying…

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Special Exposure Wednesday

    At least one member of the family got a Saturday sleep in. Chippy enjoys the one thing that eludes the parents of seven children. Why don’t you join in this Special Exposure Wednesday.  Please remember your comment love at each link you visit. Also blogging at Three Ring Circus ;

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The Window.

I used to sit at this window and watch my children playing outside. I used to sit and wonder what had gone wrong and how I was ever going to be able to pull myself out of the mud. The window was my view to the outside world because I was too scared to leave…

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